New prescription drug for CFS

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Regular Member

Date Joined Mar 2006
Total Posts : 423
   Posted 4/12/2007 9:55 PM (GMT -6)

Post Edited (Orion82698) : 4/13/2007 5:36:07 AM (GMT-6)

Veteran Member

Date Joined Jul 2005
Total Posts : 5403
   Posted 4/13/2007 7:53 AM (GMT -6)   
Thanks for the info Orion. I was pretty excited when I read the article - it sounds pretty hopeful and I'm also glad that at least some people in the medical community are trying to help people with cfs. There are just so few treatments out there right now and even fewer that seem to work.

I've been wondering about you and how you have been doing with the treatment you are getting from your new doctor. Let us know when you get a chance.

Thanks again for the information and take care.
Diagnosis:  UCTD (lupus) 2006; Raynauds 2006; Sjogren's 2006; lupus symptoms began 2003; CFS 1991; Mono 1985
Meds:  Plaquenil 400mg; Prednisone 5-10mg; Tramadol 100mg 3-4x daily; Amitriptyline 10mg; Neurontin 300mg; Prevacid; Steriod Cream and Mouth Rinse for tongue and mouth ulcers; Hydrocodone 5/500 prn for severe pain; Restasis eye drops



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Co-Moderator: Lupus and CFS Forums

Regular Member

Date Joined Mar 2006
Total Posts : 423
   Posted 4/15/2007 11:02 PM (GMT -6)   
Hey HM2!

Sorry for the lack of communication. I found a new site that is more in depth of my problems. I am however sad to inform you guys that my meds aren't helping me. I've been on Cortef, Armour and Testosterone replacement all with now effect at all.

I've heard from Sparker recently, and he seems to be doing much better. It seems that it's working for me.

I'm trying some new tests from my doctor. I have an appt this week with an Infectious Disease doctor. I'm going to have all my blood work ran again along with more in depth CBC. My IgG levels and sub levels were all very low when I had them done last year.

I'll be sure to write back sooner.

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