I just wanted to let you all know whats going on. I am in the mist of a major flare. I had an appointment with my Dr and Parmacist that works with the practice I go to. We had a meeting with my Neurologist and they decided to change my pain meds from the Fentanyl Patch to M S Contin extended release every 12 hours and Morphine for breakthrough pain. They have also changed a few of my other meds due to my health. I hope that this change will help. I am so tired of feeling so sick. Its hard on me but on my family too. I hate the fact I cant do things with my children and the most of the day I am in pain. I feel like I am twice my age. Its not fair that we have to suffer like this. I just keep telling myself that it will get better. I put my Faith and Trust in God. For He is the only one who can Heal me. I just get discouraged sometimes. (Especially, when I am in so much pain I can barely move).
I am so thankful for everyone in this group. I have made so many friends and I thank God everyday for each and everyone of you. You all help me cope with what I am going through everyday. I dont know what I would do without everyones strength and support! I am truely Blessed by the friends I have made here. Thank you from the bottom of my heart!!! You give my the courage to fight everyday. When I feel alone you help me to see I am not alone. We all share a common bond and although we suffer through days of pain and suffering, we are a family. We accept eachother on good days and bad. When one of us hurts we all hurt. I guess that even though we have this disease we are Blessed by having eachother to lean on. We are never truely alone because we all linked by this disease. Our bodies share the pain but our hearts share our friendships. Thank you for always being here!! Bless you all..
My eyes are not doing well today so I am going to sign off. Please know that even though I am not online alot you all are always in my heart and in my Prayers. I hope you all know how much you mean to me.
Bless you all...
Love & warm hugs
Soft hugs for everyone. Take the time to take care of yourself.