Wow, freezing, I could have written your post today - same issues, just different obligations for kids/family. I'm wanting my kids to have a good summer and I'm also suffering from ongoing guilt of the many times I tell them "no, I'm too tired". So, today we went shopping and stocked up on fun outdoor summer stuff and since we live over an hour away from the nearest city, we ended up running a lot of other errands too. Even though my hubby went along, I could barely function by the time we got home - my body was shaking and totally exhausted. I am just so upset because overdoing it today could send me crashing for weeks. IT's scary not to know how long this will affect me. I guess I needed to vent too.
Hang in there freezing and I hope you don't crash too hard. This is hard on our spouses and hard on our relationships. My husband is usually very supportive, but I can tell he's irritated and stressed right now because our house is a disaster and since I am crashing he's feeling the pressure that he's going to be the one to pick up the slack and then I get into the lovely guilt cycle.
This just isn't easy - believe me when I say I can really relate to what you are going through. Try to get some rest.
Diagnosis: UCTD (lupus) 2006; Raynauds 2006; Sjogren's 2006; lupus symptoms began 2003; CFS 1991; Mono 1985
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