I have a question?????

curley

Veteran Member

Joined : Mar 2005

Posts : 4305

Posted 6/15/2007 9:00 PM (GMT -7)

I hope that every one is having a good week end.I have crohns and ra,oa,as,and sejerens and I stay so tired all of the time.It does not matter how much sleep that I get I still feel really tired and it is draining me of every thing.I can't continue this way does any one have any idears as to what I can do for the sever fatiqued (sp)?I am so wore out.Thank you evry one of you.

Post Edited By Moderator (hippimom2) : 11/9/2007 8:14:36 AM (GMT-7)

hippimom2

Veteran Member

Joined : Jul 2005

Posts : 5403

Posted 6/16/2007 6:57 AM (GMT -7)

Curley, I think you asked the million dollar question that all of us are looking for the answer to. If someone could figure out how to relieve the fatigue we all suffer, life would be much easier. I'm not sure what meds you are on but a couple of things come to mind. First of all, even if you sleep a lot, you may not be getting the quality of sleep you need. There are some meds that you can take at night that will get your body to those deep restorative sleep cycles. I recently started taking a low dose of amitriptyline at night and that has helped improve the quality of my sleep. Some docs will try a low dose of SSRI antidepressants to see if that helps with fatigue. Another med out there is Provigil that was originally given to people who had narcolepsy (I think), but now it's given for all kinds of reasons, but primarily to decrease fatigue. I've never tried Provigil and have heard mixed reviews from people here who have tried it. You could talk to your doc about all of these options and also see if he/she has any ideas for you. I'm sorry you are going through this and believe me when I say I can really relate to what you are going through. Hang in there and take care Diagnosis: UCTD (lupus) 2006; Raynauds 2006; Sjogren's 2006; lupus symptoms began 2003; CFS 1991; Mono 1985 Meds: Plaquenil 400mg; Prednisone 5-10mg; Tramadol 100mg 3-4x daily; Amitriptyline 25mg; Neurontin 200mg; Prevacid; Steriod Cream and Mouth Rinse for tongue and mouth ulcers; Hydrocodone 5/500 prn for severe pain; Restasis eye drops Clickable: LUPUS INFORMATION & LUPUS RESOURCES . Please allow HealingWell to continue helping others by donating: https://www.healingwell.com/donate/ Co-Moderator: Lupus and CFS Forums

Howlyncat

Elite Member

Joined : Jan 2005

Posts : 24909

Posted 7/6/2007 2:59 PM (GMT -7)

Curley
you think the pg may also be part of this
i know with me it is ........just wondering

lyn

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Jp24

New Member

Joined : Nov 2007

Posts : 2

Posted 11/8/2007 7:30 PM (GMT -7)

hippie mom,

I am on Provigil for about three months now. It worked when I first started taking it and I almost felt like I was alive again. However I did too much and I am paying for it. The Provigil does nothing when I am down. I finally went to a doctor on tuesday and was diagnosed with cfs. VIEW IMAGE

hippimom2

Veteran Member

Joined : Jul 2005

Posts : 5403

Posted 11/9/2007 8:13 AM (GMT -7)

Hi Jp and welcome. I'm glad provigil has helped, but I think you are right that when you crash too hard, not a whole lot os going to help. I'm glad you were able to get a diagnosis. It's terrible to feel rotten and know you are sick, but to not have a name that goes with it. I'm glad you joined us. Diagnosis: UCTD (lupus) 2006; Raynauds 2006; Sjogren's 2006; lupus symptoms began 2003; CFS 1991; Mono 1985 Meds: Plaquenil 400mg; Prednisone 5-10mg; Tramadol 100mg 3-4x daily; Doxepin 25-50mg; Prevacid; Steriod Cream and Mouth Rinse for tongue and mouth ulcers; Hydrocodone 5/500 prn for severe pain; Artificial tears Clickable: LUPUS INFORMATION & LUPUS RESOURCES . Please allow HealingWell to continue helping others by donating: https://www.healingwell.com/donate/ Co-Moderator: Lupus and CFS Forums

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