new to CFS

new to CFS

curlyann

New Member

Joined : Jun 2007

Posts : 1

Posted 6/30/2007 11:58 AM (GMT -7)

It's really kind of sad, but in my disability hearing Monday, the Dr. in the hearing diagnosed me with Chronic Fatigue Syndrome and he'd never met me before! Just by looking over the test results supplied by my attorney and asking me a few questions he gave me an answer that I've been waiting years and spent thousands of dollars looking for! His diagnosis of CFS as well as accurate test interpretation gave the judge more than adequate reason to determine me disabled. It's hard to go for decades without a diagnosis and you KNOW you're not crazy or making things up and you watch yourself go from bad to worse with nobody being able to find out what's wrong and then not caring enough to look further. I am glad there are others to talk to about this!

hippimom2

Veteran Member

Joined : Jul 2005

Posts : 5403

Posted 7/1/2007 8:55 AM (GMT -7)

Hi curlyann and welcome. It sounds like you've been down the road that a lot of us have been down, knowing there is something wrong, but docs not being able to figure it out and making you feel like you are crazy. I'm really glad your disability went well - from what I've heard it's very very hard to get and people often have to go through years of red tape and denials. I'm glad you joined us and am looking forward to hearing more from you. Take care Diagnosis: UCTD (lupus) 2006; Raynauds 2006; Sjogren's 2006; lupus symptoms began 2003; CFS 1991; Mono 1985 Meds: Plaquenil 400mg; Prednisone 5-10mg; Tramadol 100mg 3-4x daily; Amitriptyline 25mg; Neurontin 200mg; Prevacid; Steriod Cream and Mouth Rinse for tongue and mouth ulcers; Hydrocodone 5/500 prn for severe pain; Restasis eye drops Clickable: LUPUS INFORMATION & LUPUS RESOURCES . Please allow HealingWell to continue helping others by donating: https://www.healingwell.com/donate/ Co-Moderator: Lupus and CFS Forums

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