From another board, does this sound like CFS?

HI tiger, it's so hard to tell where the fatigue and pain might be coming from, especially since you are dealing with UC. You are right that these symptoms could be part of the health problems you already have, or it could be something different like CFS. A lot of your symptoms are present in CFS, but it's hard to diagnose because these symptoms are also present in a lot of other illnesses. What does your doc think? I guess I would start with a good doc that you trust and can really talk to and go over your symptoms in depth. Your doc should rule out any other illnesses with labs and then hopefully you can get to the bottom of these symptoms. Since these are newer symptoms, I would think your doc would be looking into the cause. Let us know if you have any other questions. I wish there were easy answers, but of course nothing is asy when you are dealing with a chronic illness. Hang in there and take care. Diagnosis:  UCTD (lupus) 2006; Raynauds 2006; Sjogren's 2006; lupus symptoms began 2003; CFS 1991; Mono 1985 Meds:  Plaquenil 400mg; Prednisone 5-10mg; Tramadol 100mg 3-4x daily; Amitriptyline 25mg; Neurontin 200mg; Prevacid; Steriod Cream and Mouth Rinse for tongue and mouth ulcers; Hydrocodone 5/500 prn for severe pain; Restasis eye drops   Clickable:   LUPUS INFORMATION & LUPUS RESOURCES . Please allow HealingWell to continue helping others by donating: https://www.healingwell.com/donate/   Co-Moderator: Lupus and CFS Forums

Hi Tigerb. I agree with hippie mom as this could be related to many different things. Please don't accept a diagnosis of CFS until you rule out other things. I thought I had CFS for 14 years, but it turns out I have lyme disease. I am now in treatment for that and recovering. I look forward to being healthy again instead of sick for the rest of my life.

Your symptoms sound just like mine, especially the joint pain. I also used to sleep whenever I could. I still sleep alot, but not allday and night like I used to.

My advice would be to find a doctor who will run some tests to rule out things like mycoplasma infections, cytomeglio virius, Epteiin barr virus and lyme disease and others. An igenex test is the best test for lyme disease. You could also have your thyroid checked, as this can cause many problems as well. Thyroid illness is common with some of these other illnesses. I take t3 which has helped me as well.

 

good luck to you!!

Stutterbug,

Thirst is an issue of mine for sure. I assume you have been tested for diabetes? That's usually the first thing they check for excessive thirst.

This can be a symptom of many illnesses. So is your fatigue. I have lyme disease and these symptoms are a huge part of my illness. They are symptoms of other illnesses such as Candida, EBV, Fibro, CFS and many others. Google candida as this is very common with people with lyme disease, fibro and CFS. I have candida along with lyme disease.

good luck