MY FEELINGS ARE VALID.

stutterbug, you are so right when you say that what you are experiencing is NOT in your head.  It's so hard for healthy people to understand the level and the magnitude of the fatigue we feel.  It is not the tired feeling that healthy people get, it is an overwhelming and debilitating fatigue.  There's a website that you might want to look at and there's something great there called The Sppon Theory which explains to healthy people what it is like to live everyday with a chronic illness.  The woman who wrote is has lupus, but it can be applied to any dbilitating illness.  The website is: http://butyoudontlooksick.com   I printed out copies of the Spoon Theory and gave them to my husband and other people who are close to me. Diagnosis:  UCTD (lupus) 2006; Raynauds 2006; Sjogren's 2006; lupus symptoms began 2003; CFS 1991; Mono 1985 Meds:  Plaquenil 400mg; Prednisone 5-10mg; Tramadol 100mg 3-4x daily; Amitriptyline 25mg; Neurontin 200mg; Prevacid; Steriod Cream and Mouth Rinse for tongue and mouth ulcers; Hydrocodone 5/500 prn for severe pain; Restasis eye drops   Clickable:   LUPUS INFORMATION & LUPUS RESOURCES . Please allow HealingWell to continue helping others by donating: https://www.healingwell.com/donate/   Co-Moderator: Lupus and CFS Forums

hippiemom: We like the spoon theory over at the Lyme Board - in fact I did a post just today on how I "ran out of spoons" I am going to print it out and share it, too - that's a great idea.

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Too much of anything is no good - moderation is the key.

Wow, I popped over here just to see what people were talking about with the Spoon Theory...Just read it and I actually got chills! That was a really amazing description.

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Lyme Disease since fall 2001; on antibiotics since spring of 2005 (since diagnosis), treating lyme, babesiosis, ehrlichiosis

Moderator for Lyme Disease forum

Totally feel for you. Its next to impossible to explain to someone else what its like to have your energy metered down to such a finite degree and have things they take for granted cause you significant physical discomfort. Add the constant brain fog which robs you of reason and leaves you just feeling constantly like you 'dont want' and things are getting grim.

When you feel so sick and tired its also quite hard to explain rationally in a quiet moment. Most people with cfs feel rubbish all the time which puts you in a bad mood constantly, arguments arise very easily because you feel so embattled and if you feel like your partner is adding to the misery its very easy just to snap and lash out at another thing your fighting. In a sense cfs puts you in constant 'battle mode' because you feel like youre being attacked by something.

That Spoon book sounds good, maybe you could ask your fiancee to read this thread as well.

It would really help your relationship if you try and involve her in your disease and make her a stakeholder in your recovery as well. You shouldnt forget that she probably feels very frustrated because she doesnt understand why youre acting as you are and doesnt feel like she can do anything. She may well think youre losing interest in her, you need to stress that isnt the case.

There is quite a bit she can help you with. Many people with cfs find that going on a diet to help post viral fatigue really helps. I had a good book by a Leon Chaitow called Post Viral Fatigue Syndrome, I dont know if its still in print but he seems to have this website with some other books that are probably good too:

http://www.leonchaitow.com/candida.htm

you totally cut out caffeine and sugar to give your poor old adrenal glands and pancreas a break and also have to eat fresh food that wont aggravate candida or immune reactions and will complement eachother to boost your system.

All this takes a fair bit of preparation and if you feel very poorly all the time its tough to buy and prepare it all. When you start out it will probably make you feel worse before you feel better. If she can help you with that and feel like shes making a difference to this thing then the context of her relationship with you and your illness will really change.

Once I got off the diet personally I also found a product called Threelac to combat candida worked quite well as well and my doctor has me on an antidepressant called paroxetine which helps a great deal too.

Best of luck