I'm having a hard time with this one too. Prior to getting lupus (when my cfs was in remission) I was very into fitness and did a lot of running and also lifted weights regularly. It seems that everytime I try some light exercise my body crashes. Also I used to eat very healthy but now I have weird food aversions and can't stomach a lot of foods I used to eat a lot of.
I do think that even 5 minutes of light exercise is better than nothing and I have been at least trying to do some light stretching even if I'm not up for a walk or other exercise. Some easy yoga or pilates are also good alternatives and my body tollerates easy versions of these.
Diagnosis: UCTD (lupus) 2006; Raynauds 2006; Sjogren's 2006; lupus symptoms began 2003; CFS 1991; Mono 1985
Meds: Plaquenil 400mg; Prednisone 5-10mg; Tramadol 100mg 3-4x daily; Amitriptyline 25mg; Neurontin 200mg; Prevacid; Steriod Cream and Mouth Rinse for tongue and mouth ulcers; Hydrocodone 5/500 prn for severe pain; Restasis eye drops
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