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Regular Member

Date Joined Jul 2006
Total Posts : 388
   Posted 8/15/2007 10:24 PM (GMT -6)   
I have a question about EBV testing.  I had mono about 2 yrs ago.  It was a really bad case.  It wiped out my immune system so that it took 5 months before my IS started to respond.
I have been tested since and it was 'dormant' I was told.  It showed up as low.
Recently after my DD's wedding, I started with the all to familiar feeling and started sleeping 24/7 almost.  I had no energy and hurt all over.  It also caused a horrible fibro flare.
I was going to have repair urinary surgery on this coming Friday, but thought I should ask my dr. about it.
TOday the nurse told me that my EBV test was HIGH, but the dr. thought that it would be okay to go ahead with the surgery.
My hubby was uncomfortable with me still being weak and facing surgery so I put it off until the middle of Sept.
My question is (sorry this was so long getting to the point) does a HIGH just mean it is HIGH and not active or that it is active again?
I know that I have felt almost like I did year before last, but seem to be bouncing back if I stay out of the heat.
Thanks in advance for your help!

Veteran Member

Date Joined Jul 2005
Total Posts : 5403
   Posted Yesterday 8:24 PM (GMT -6)   
I don't blame you or your husband for being worried about surgery while you aren't feeling well. I'm not sure that it would affect your surgery at all, but I'm guessing it might make your recover tougher and longer. You'd have to talk to one of the docs to find out what they mean by "high" and to find out if it means your EBV is active. I don't know much about it except that I think once you have it, you always rest positive for it (I think).

I had a really bad case of mono a long time ago and I feel like I was never really the same after it. For some reason I think some people can make a full recovery and others of us never really do.

I wish I could give you some more definite answers. Let me know if you have other questions. The cfs forum is pretty slow most of the time, but I usually check it at least once a day.

Take care and I hope you get some answers from your doctor.
Diagnosis:  UCTD (lupus) 2006; Raynauds 2006; Sjogren's 2006; lupus symptoms began 2003; CFS 1991; Mono 1985
Meds:  Plaquenil 400mg; Prednisone 5-10mg; Tramadol 100mg 3-4x daily; Amitriptyline 25mg; Neurontin 200mg; Prevacid; Steriod Cream and Mouth Rinse for tongue and mouth ulcers; Hydrocodone 5/500 prn for severe pain; Restasis eye drops



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Regular Member

Date Joined Jul 2006
Total Posts : 388
   Posted 8/19/2007 1:54 AM (GMT -6)   
Thanks for you reply. I usually read on the fibro forum. In trying to research and get an answer to my own question, I came across a medical site that said that one your have activated the mono 3 or 4 times, the dr. usually considers it to be CFS. (I don't have the web address though) sorry.

Regular Member

Date Joined Aug 2007
Total Posts : 22
   Posted 8/21/2007 9:18 AM (GMT -6)   
I have CEBV and test high when I'm going thru a flare. Once you have EBV, you always have it. Once you titer levels get very high after awhile, it becomes Chronic Ebstein Barr Virus. You have all the sytoms of mono, but the flares last from 1 wk. to 5 wks. It takes awile to get over a bad flare. You MUST rest, eat right, don't get stressed, and excercise when you can. That is the only cure. Your dr. should test your blood regularly to keep track of your counts.
Try the WEB MD site to look it up.

Sandy B
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