My journey with this all began four years ago with my first bout of what I believe is CFS. Then two years later. Both times in happened in the spring/summer/early fall and I was able to continue teaching. THIS time it happened in July and is still here. I am on medical leave now. I have a bunch of CRAZY symptoms including: total exhaustion, tingling/burning/numbness in my feet/hands/arms/lower legs at times, low grade fevers in the afternoon, no short term memory or ability to concentrate. At the beginning of each episode I had a sore throat and swollen glands. I don't have: Lyme's Disease, HIV, Lupus, or RA. I've had x-rays and MRIs of my knees, neck, hips, and spine. Other than sings of aging (I'm 52) everything is fine. My sed rate is low but my billirubin is slightly high 1.67 (upper limit of the range is 1.3). I had a liver ultrasound last week and am awaiting results. I've seen a GP and a neurologist. I see a rheumy on Monday. The GP thinks it's fibro but I just don't have the pain! My joints ache randomly and I'm stiff in the mornings, but I am not at all tender to the touch.
In any event, please think good thoughts for me. I'm eager to TRY and begin to get a diagnosis, but I'm also scared.
Are any of you out there single and depend on yourself financially? This is what scares me the most ... loss of a good full time job and benefits.
Thanks for any light you can shed!
age 52/Type 2 diabetic/"controlled" by diet and exercise