Newbie Here

 

 

 

Hi Cyndi

It's nice to meet you.  I have had M.E. for 3 years going into my 4th year.  It is frustrating but I believe there is a purpose for everything.  If I don't sound like a brat... the worst is the "boredom tiredness" too tired to read a book or write an email, but not tired enough to sleep.  I will lie there for days like that.  I did join a support group and then I got better so I stopped going, I am looking at rejoining this year since I have relapsed and am back to being in bed everyday.

I hope you're having a "good" week.

brightbundle

WELCOME BRIGHT!!

I couldn't resist the bright colors to go with your name!  For those who aren't aware, CFS is called ME (Myalgic Encephalomyelitis) in some parts of the world.  I probably butchered the last word in that name, but that is very close.

I'm sorry to hear you've had a relapse.  That is a very interesting term "boredom tiredness".  It does tend to imply depression, doesn't it?  But I think I know what you mean.  There are times when I'm exhausted, but can't sleep OR engage in any activity.  I can just stare off into space for hours, days if I had the chance.  After a certain point, though, things just have to be done.  For me, anyway, and I have to do them anyway, exhausted though I may be.  I don't have a family or readily available support system, or I'm sure I would stare off into space for longer and more often!!

One thing that I think is effective for counteracting this bored tiredness, is to focus on those things that I'm passionate about.  For most people, I think their families fit the bill.  Without a family, I still have a number of things that I'm passionate about.  And just to lay there and think about them, passes the time for me.  They have to be non-stressful passions, however.

Well, thanks for taking the time to join HealignWell and post a message.  We're all glad to meet you, and look forward to meaningful and inspiring discussions in the future.  Best wishes.

Hi Cyndi,

I'm sorry it's taken so long for me to make the longer reply I promised you in my earlier message.  I know all too well what you mean about it being easier to list what you don't have.  My list of diagnosises looks like alphabet soup--FMS, CFS, MPS, IBS, IC, etc.

I never actually had much of a "career", from which I was forced by my health, to retire.  But I did support myself, and had to go on disability at the age of 37.  Now, at 47, I'm finally starting to improve some, but seriously doubt I could re-enter the job market, much less build a career.  It will take a great deal more improvement before I can handle the stress of competition.  And I just don't think there is enough time for my body to heal AND to build the career.  So in a way, even though you had to retire early, I feel you are fortunate to have had a career, brief though it may have been.  Do think there is any chance you'll ever be able to return to work, of any kind?

That's an interesting sig you have there--something with its tail cut off?  I followed the link to mymailsig...com but didn't want to download the program just to get more info.  Well, I don't mean to pry--it's just interesting!

Once again, sorry to have taken so long to make a decent reply.  Looking forward to getting to know you better, and to interesting discussions in the future.  This board is just now becoming active, so there are some stretches between replies sometimes.  But it will grow before too long.  Take care, hope to hear from you again soon.  Best wishes.