It's nice to meet you. I have had M.E. for 3 years going into my 4th year. It is frustrating but I believe there is a purpose for everything. If I don't sound like a brat... the worst is the "boredom tiredness" too tired to read a book or write an email, but not tired enough to sleep. I will lie there for days like that. I did join a support group and then I got better so I stopped going, I am looking at rejoining this year since I have relapsed and am back to being in bed everyday.
I hope you're having a "good" week.