Hi there. I'm new to the forum, but I've been reading some of the posts for a time now.
I have chronic mid-back pain and can't seem to find any relief. I seem to have a high tolerance for medications (this has been an issue all my life - when I was a kid, it took extra meds to relieve pneumonia, at the dentist it took more numbing medicine for a filling than for most people, a doctor's notes following a procedure say "it took an unusual number of doses before she was sedated," after a surgery a nurse told me "we gave you enough fentanyl to drop an elephant - I can't believe you are still awake and coherent!" and the list goes on...). Anyhow, that causes obvious problems with treating my pain. The docs have prescribed myriad medicines in an attempt to help, but none have really even touched it. The only thing that takes the edge off is percocet and then only after several doses. Which is weird, because stronger meds at higher doses haven't even touched it. I wish the docs would just put me in a room and watch me after taking these meds so they could see that they aren't working. I can completely understand that they need to watch out for drug seekers, but I think I've demonstrated to them that I am not in that category. After trying Kadian (if I remember right, I was up to two 80mg doses each day) and finding that it didn't work at all, I quit it. When I called the dr. office to report and talked with a nurse, she said "don't just stop it outright - you need to titrate down or you'll go into withdrawal." I said "well, I stopped it 5 days ago when I ran out of pills and I don't feel any different - what is the withdrawal supposed to be like?" She couldn't believe I wasn't feeling the effects. I told her I thought it made sense that since there were no EFFECTS at all from the drug that I would also not have and SIDE-effects and it follows that I wouldn't have withdrawal from something that never worked!
I just need to vent, I guess, and it seems like everyone here can understand. The docs want me to be depressed or to push some wrong diagnosis on me so they can say there is nothing they can do. I have tried every drug they wanted me to - including anti-depressents (and now I'm on Lyrica - an anti-convulsant). I have no pre-disposed opposition to these drugs or those diagnoses. I know they are very real problems, but they don't fit my symptoms. I thought maybe this was Fibromyalgia for a bit, but I don't have the right symptoms. I have also tried physical therapy, cognitive therapy, behavioral modification, you name it! I push through the days by using the techniques they've taught me, but none of it makes the pain go away! What's really frustrating is that they say they would be willing to be more aggressive with treatment if I were totally disabled - that is, I should give in to it and go on disability, stay home from work and let it take me over. What kind of advice is that!?!?
OK, I'm done for now. Thanks for just listening. (or reading, I guess! )