I look too healthy on the out side to get help

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New Member

Date Joined Dec 2007
Total Posts : 11
   Posted 12/26/2007 1:52 PM (GMT -6)   
    I am a new member of your forum. thank you for the chance to ask and add my knowledge of this controversial subject (i.e. chronic pain rsd. I live in central il., and I find that Dr.s take on look at me and decide that I am a drug seeker (sound familliar).
    I would like ti listen to any of your suggestions and or referals to any clinicc where the Dr.s aren't more interested in finances than they are in their patients. I have been 'biting the bullet" for the last three and a half yr\ears. I can go to Chicago or St. lois to get help.

Forum Moderator

Date Joined Jan 2005
Total Posts : 9156
   Posted 12/26/2007 10:51 PM (GMT -6)   
Welcome Pincushion,

You are mighty brave to go so long without pain help. That shows what kind of doctors are out there...ones who have forgotten what compassion is. They are more afraid of their financial backsides that treating their patients with respect. It just infuriates me!

If you are going to try to find someone who will actually treat your pain then I would suggest a teaching/university hospital. You can shop around but the more you do the more it does look like a seeker. Usually the teaching hospitals are on the cutting edge of not only conditions but how to treat them. Check online where the nearest one is to you. And please keep us posted...

Co-Mod Fibromyalgia & Chronic Pain Forums
Fibromyalgia, Ulcerative Colitis, Insulin dependent diabetic, collapsed disk, dermatitis herpetiformus, osteo arthritis in spine and other locations.

The only difference between genius and stupidity is that genius has it's limits. Albert Einstein: (1879-1955)

Veteran Member

Date Joined Dec 2007
Total Posts : 639
   Posted 12/27/2007 2:51 AM (GMT -6)   
I can empathize with your subject line!! The last doc I visited told me that I just needed to accept that I was going to have this pain for the rest of my life - he said based on my films it looks like essentially I'd need almost all of my discs replaced, which they couldn't do. I asked for a copy of the dr. notes and they said "patient appears comfortable." (If only saying it would make it so!!!) I think we spend so much time and effort pushing through the pain fog and trying to "fake it till we make it" that we fool the wrong people!

getting by
Forum Moderator

Date Joined Sep 2007
Total Posts : 42531
   Posted 12/27/2007 12:51 PM (GMT -6)   
May I ask what is causing your pain? I have fibromyalgia and have chronic pain all of the time. Do you have a diagnosis?

Just curious


getting by
fibromyalgia, chronic fatigue, clinically depressed and allergies

Forum Moderator

Date Joined Feb 2003
Total Posts : 16584
   Posted 12/27/2007 1:41 PM (GMT -6)   
Getting By,

She has reflex sympathetic distrophy which is a debilitating disease. There is no cure for it, the main thing is to find what limited care is available for the condition.


getting by
Forum Moderator

Date Joined Sep 2007
Total Posts : 42531
   Posted 12/27/2007 2:17 PM (GMT -6)   
That is so awful.
I hope that she can find some relief soon.
Luv and hygs
getting by
fibromyalgia, chronic fatigue, clinically depressed and allergies

Regular Member

Date Joined Dec 2007
Total Posts : 450
   Posted 12/27/2007 7:23 PM (GMT -6)   
I type those reports for a living. There have been times I have gone to a doctor and I ended up being the one typing the report because no one else was around to do it and we aren't allowed to "dump reports"...they would go on saying "lungs are clear, heart has no murmur, abdomen soft and flat," but the doctor never even took a listen to my lungs or pressed on my abdomen to know it was soft!!!! The doctors dictate at least 20 of these reports a day, many of them at lightning speed because it is their "usual" physical exam. Also, it could be a typo on the transcriptionist's part if he is dictating at lightning speed.
Mochiah/a.k.a. Sue
cervical fusion 2006, with great result
L4-5 surgery with cages, plates, and screws in 2005, I have continued pain 
MEDS:  Fentanyl patch, Norco, Celexa, and trazodone
Im going to smile like nothing is wrong, act like everything is perfect, and pretend its not hurting me. (quote used with permission from "Tennis").

Veteran Member

Date Joined Mar 2005
Total Posts : 4305
   Posted 12/27/2007 11:26 PM (GMT -6)   
Welcome,glade that you found us.I am sorry that you are having to deal with this I can't even come close to what you are feeling and I hope that you are able to get the help you need,and please know that you are welcome any time.

Veteran Member

Date Joined Dec 2004
Total Posts : 921
   Posted 12/28/2007 1:30 AM (GMT -6)   
...Not that this makes you feel any better...but I have been told the exact same thing, You look too good to feel bad. It makes me want to beat myself with a tire iron just so I LOOK how I FEEL!!!
Sara-Migraine/Headache Forum Moderator
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Veteran Member

Date Joined Mar 2005
Total Posts : 3148
   Posted 12/28/2007 8:56 AM (GMT -6)   
hi there & i'm truly sorry for the he** you're facing.
if we were animals...for the most part i think we would all be put out of our misery because it's NOT HUMANE TO BE LEFT TO LIVE IN SEVERE PAIN! mad makes me mad.
but there are solutions even if they are difficult to come by.
1st...who is the doc NOT treating you pain? a rheummy? a primary doc?
some physicians if they are in a practice w/ many other Dr.'s or if it's a specialty, their scope of practice in what they can RX is limited...so they may not be able to "by office policy" to RX narcotic pain meds.
getting refered to a pain management specialists or an anesthesiologist is a good idea.
also, make a list of every nsaid, OTC & RX medication used to treat the pain you have. be specific as how it did or did not work, for how long & how much of a dose you had to use.
write down what causes or makes the pain worse, what makes it better, etc....
it could be that you'll need a good combo of pain meds whether it's a combo of nsaids, opiates, steroids, injections, patches, SSRI's, etc...
presenting a list i made like that really go the ball rolling & made things more clear for my physicians to see what ype of meds i was responding to.
bless you & best wishes.
Arthritis Forum Moderator & Co-Pilot
Active Severe Rheumatory Arthritis. AS. Crohns Disease. A.Chiari Malformation. MVP & Tricuspid Valve Prolapse. Kidney Stones (oh joy). 
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