Posted 1/2/2008 6:54 AM (GMT -6)

Have you been checked for Chiari malformation and Syringomyelia . Do any of these symptoms sound familar ?

Syringomyelia T4-T10
Chiari Malformation
Decompression Surgery 1999
"Remember That Life Is Short!!!" Life is short, break the rules, Forgive quickly, Love truly, laugh uncontrolably, And never regret anything that made you smile. <!-- / sig -->


Posted 1/2/2008 8:06 AM (GMT -6)
Razzle---those don't sound familiar----they never "explored' them with me!

I feel that they think I am just stressed b/c I am (was) pretty active (athletic)---young (in my 30s) and a Mom to three young kids (all under age 9)-----so, I feel (right or not)---that they are passing this off as anxiety! It's crazy---and it made me anxious b/c I felt (feel) no one is listening to me! I go in and circle those stupid "body charts"---where is your pain---give them detailed info. on the pain, the feeling, etc... and it's like, "here---take celexa, lexipro, klonopin, PPIs, tramadol, flexerol, mobic, you name it"----geez! :(

So, when I go in on Tuesday (to my primary guy)----I want to be prepared to shoot-from-the-hip---and get some results---quickly! Not in two months-not in 6 weeks---quickly! 8 months is too long to figure nothing!

I will look into what you highlighted for me above! Thanks for responding...I am very frustrated---and sad about this.......:(

Posted 1/3/2008 7:43 AM (GMT -6)
Hi hopeisreal, i to have simiular experiences but the coldness and purple thing happens in my feet, i also get the burning sensations and pains, heaviness in the legs, and the odd time i get a pin prick sensation in my toes, mild tingling and numbeness, no accurate diagnosis has been made but trying to find the answers, hang in there and let me know how you are doing and what the medical outcome is. Twiggy2
Posted 1/3/2008 8:21 AM (GMT -6)
Thanks Twiggy2! I will keep ya' posted...........
Posted 1/3/2008 8:35 PM (GMT -6)
I always ask people with unknown chronic pain, especially like this, whether they may have had an infection or other "immune shocking event" like food poisoning, digestive crisis, et cetera prior to developing their pain symptoms.

If so -- and even in some cases where the patient can't remember the triggering event -- one may want to look into Reactive Arthralgia/Arthritis, AKA Reiter Syndrome. This can be a very severe form of athritis/myalgia with lots of seemingly random symptoms throughout the body. Mine was triggered by a series of severe Staph infections in my knee/groin/pelvis/reproductive system (epididymis, vas deferens, spermatic cord, pelvic lymph nodes, etc).

Reactive Arthralgia is a much more common condition than most docs realize or acknowledge. Most cases are simply so mild and so sporadic (with long periods of remission in between seemingly random flares which the sufferer may not recognize as a rheumatic illness) that the sufferer isn't sure what the heck is happening, and many docs don't recognize it even when it's severe and relatively obvious.
Conditions: Chronic Pelvic Pain, Severe Lesioning of the Spermatic Cord, Reiter Syndrome (Reactive Arthritis and Myalgias along with a slew of other symptoms), Sacroiliitis, Costochondritis, widespread Tendonitis, and on and on. Typical daily pain levels exceed 8.5.

Medications: Methadone, Oxycodone ER, Dilaudid, Lidoderm (lidocaine) Patches, Flexeril, Soma; many herbs & supplements.

Previous medications: Oxycontin, Opana ER (12 hour time releasd Oxymorphone, Endo Pharm.), generic Mylan Fentanyl patches (two 100mcg/hr patches worn simultaneously, changed every two days), Kadian, Avinza, MS Contin, Lortab (hydrocodone), OxyIR, Cymbalta, Lyrica, Neurontin, Amitryptyline, every NSAID known to man, Prednisone, and many more.

Posted 1/4/2008 5:00 PM (GMT -6)
Exit--- never thought of that--- the only thing I can think of is that I had a SERIOUS panic attack when I found some fibroid-cysts on my right breast (5 of them)----back in May---and I must have been in a panic for about 1 day! It was horrible---and I never had that happen before! Do you think that could be an "immune shocking event"? I mean---I "literallly" rattled my body beyond----BEYOND!

I will look that info. up!
Posted 1/11/2008 2:58 PM (GMT -6)
You have thoracic outlet syndrome, or a bronchial plexus injury - or both

Do some research on the two, and ask your doctor. It matches your symptoms perfectly. I have the same thing, and at best, I get mild results from painkillers (oxycontin 40mg BID, and 10mg oxycodone, TID) - and the rest is just hell to deal with.

Good Luck.

also, try peppermint for a neasea - for some reason, it helps me.

Forum Information

Currently it is Tuesday, October 16, 2018 4:41 AM (GMT -6)
There are a total of 3,012,130 posts in 329,913 threads.
View Active Topics

Who's Online

This forum has 161872 registered members. Please welcome our newest member, aerhefrde.
146 Guest(s), 2 Registered Member(s) are currently online.  Details
We_Davis, Subdenis