Posted 1/3/2008 3:41 PM (GMT -7)
I have locked joints in my hips and knees sometimes...I wake up with locked joints sometimes and I take Robaxin for that and find that Robaxin seems to prevent my knees and hips from locking while I am sleeping. Locked joints are very painful...its the muscles that are so tight that its hard to unbend my knees and hips and I have to coax them to unbend and then I take my cane and limp over to the tub and run a hot bath...hot water helps loosen up the joints.
Born with hip dysplasia in left hip, 2 surgeries to fix it when I was a very small toddler.

Also, 2 injured discs in lower back at L3-L4 and at L4-L5.

Meds:
Zyprexa 5 mg
Wellbutrin XL 150 mg
Klonopin 2 mg
Neurontin 600 mg 3x a day
Percocet 5/325mg
Robaxin 750 mg 1-3 tablets a day
Ibuprofen 800 mg
Fentanyl Patch 12 mcg/hr

Posted 1/3/2008 4:26 PM (GMT -7)
Lucia - your decription perfectly explains it....that it isn't actually the "joint" that locks, but the muscles surrounding things getting so tight. I do not even want to imagine how painful that is for you. I know that the cramping I get is so severe it makes me catch my breath and want to cry, what you and hopeisreal have sounds more painful.

Oh how many times I have wished I could sit in the hot tub, but I can only do that on days when I change my patch...take old patch off, sit in hot tub, cool down then put a new patch on!!

My heart goes out to you two, it just sounds horrible to have to deal with.
Mochiah/a.k.a. Sue
cervical fusion 2006, with great result
L4-5 surgery with cages, plates, and screws in 2005, I have continued pain 
MEDS:  Fentanyl patch, Norco, Celexa, and trazodone
 
Im going to smile like nothing is wrong, act like everything is perfect, and pretend its not hurting me. (quote used with permission from "Tennis").

Posted 1/3/2008 5:40 PM (GMT -7)
Thanks Lucia and Mochiah---I appreciate your support and advice....i am going to try the hot bath thing----and relaxation techniques---and the back specialist! :) In the meantime----heat, heat and hot baths--plus my stretching! :)

Laurel
Posted 1/3/2008 6:03 PM (GMT -7)
Mochiah said...
Lucia - your decription perfectly explains it....that it isn't actually the "joint" that locks, but the muscles surrounding things getting so tight. I do not even want to imagine how painful that is for you. I know that the cramping I get is so severe it makes me catch my breath and want to cry, what you and hopeisreal have sounds more painful.

Oh how many times I have wished I could sit in the hot tub, but I can only do that on days when I change my patch...take old patch off, sit in hot tub, cool down then put a new patch on!!

My heart goes out to you two, it just sounds horrible to have to deal with.

 Sue-  I, too, have had my hip joint lock up on me and it hurts! I've had it happen after laying on hard surfaces like exam tables or during cold weather, or after laying in one position in bed all night long. I can attest to the fact that soaking in a warm tub of water helps to relax the muscles enough to be able to get moving.  Muscle relaxers also help.  But, it's not fun to wake up in the morning and not be able to move! 
-Born with Spina bifida 
 
-Dxed with hydocephalus @ 3wks of age.  Shunted with a V/A shunt since age 6.
 
-Dx'ed with unilateral hip dysplasia since age 6.
 
- Dx'ed with fibromyalgia in 2004
 
- Dx'ed   Depression/GAD/PTSD since 2000
 
Current meds:
 
Paxil 50mgs
Risperdal Consta 25mg
Trileptal  900mg
Atarax 25mgs
Ketoprofen 200mgs
Lorcet 10mgs (PRN)
Xanax  2-6mgs (PRN for acute anxiety or panic attacks)
Flexeril  10mgs for muscle spasms and pain

Posted 1/3/2008 7:30 PM (GMT -7)
In that condition it sounds like even getting INTO the warm tub of water is difficult, and to have the pain in the hips and bum...only some of the largest joints/muscles in the body...why can't it be somewhere more tolerable, like your pinky!!!!!!

I go to my doctor tomorrow and am going to ask about the muscle relaxer. I'll let you know what we end up trying.
Mochiah/a.k.a. Sue
cervical fusion 2006, with great result
L4-5 surgery with cages, plates, and screws in 2005, I have continued pain 
MEDS:  Fentanyl patch, Norco, Celexa, and trazodone
 
Im going to smile like nothing is wrong, act like everything is perfect, and pretend its not hurting me. (quote used with permission from "Tennis").

Posted 1/3/2008 10:32 PM (GMT -7)
Mochiah said...
In that condition it sounds like even getting INTO the warm tub of water is difficult, and to have the pain in the hips and bum...only some of the largest joints/muscles in the body...why can't it be somewhere more tolerable, like your pinky!!!!!!

I go to my doctor tomorrow and am going to ask about the muscle relaxer. I'll let you know what we end up trying.

It is, but once you're there, it's a godsend.  Even a hot shower works wonders with very stiff joints. 
 
Please let us know.  I've given my support for flexeril, but Lucia takes Robaxin and I've also tried that as well.   Either one is really good, IMHO. :)
 
 
-Born with Spina bifida 
 
-Dxed with hydocephalus @ 3wks of age.  Shunted with a V/A shunt since age 6.
 
-Dx'ed with unilateral hip dysplasia since age 6.
 
- Dx'ed with fibromyalgia in 2004
 
- Dx'ed   Depression/GAD/PTSD since 2000
 
Current meds:
 
Paxil 50mgs
Risperdal Consta 25mg
Trileptal  900mg
Atarax 25mgs
Ketoprofen 200mgs
Lorcet 10mgs (PRN)
Xanax  2-6mgs (PRN for acute anxiety or panic attacks)
Flexeril  10mgs for muscle spasms and pain

Posted 1/3/2008 10:43 PM (GMT -7)
Laurel, your post title caught my eye.  I was just diagnosed with arthritis in 4 of the 7 vertibrae in my neck.  I'm 34.  Big shock.  It's not rheumatoid arthritis either (which is usually what comes with lupus), it's plain old arthritis.  But I think I know why the PT would call it being "locked".  Because of the arthritis, my vertibrae don't sit together properly.  Arthritis deteriorates the bone and disks.  so in a sense, the vertibrae can "sort of" lock up and not move properly. That is what causes all the pain.  That's for anyone with arthritis anyway.
 
Have you had any xrays of your neck?  They can diagnose arthritis (degenerative disk disease) by simple xrays.  I start my physical therapy this month.  I also get dizzy, nauseated, headaches, and feel just plain awful.  I hope you get the answers and treatment you need.
 
All the best,
Ginny
I can do anything through Jesus Christ who strengthens me. I have learned in whatever state I am in,to be content. Phillipians 4:11-13

33 years old. Diagnosed with lupus in 2000. Fibromyalgia, anti-phospholipid syndrome(APS)(stroke),Sjogren's, Raynaud's, seizure disorder-(miraclulously disappeared!), Libman Sach's Endocarditis, vasculitis, sacroiliitis, arthritis (neck) . Prednisone, Imuran, Coumadin, Clobazam, Amitriptyline, didrocal, monopril, calcium, Cykolokapron, multi-vitamin, vitamin D, Magnesium, vitamin B6, Acidophilus

Posted 1/4/2008 5:11 AM (GMT -7)
Ginny:

I had a spine (including neck) xray way back in May---they told me that I have mild-arthritis in my Lower Back! LOL----nothing about my neck! But---then again, I also had some serious pains in my mid-back at that time----so, who knows, maybe they were focusing on my mid-back, and overlooked my neck?

I took Flexerol at the beginning of all this mess---it made me way to sleepy (with 3 little kids--I can't afford sleep :) ), so I stopped taking that---maybe I should talk to primary MD about a muscle relaxer that 'doesn't' makeyou drowsy? Is there such a thing?

Laurel

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