This sounds to me to be the closest thing possible. There is also RSD (some say its the same thing, other doctor's view it a bit differently. I have a friend who's had RSD for 22yrs, but that would usually occur after a trauma to the spine and circulation would be affected. CRS isn't a shot in the dark when you realize the patient not only has pain but the area involved becomes swollen and changed in color, resisting all attempted treatements, and lasting this long. I agree that the sports med guy has probably seen this before, even if he can't treat you, his notes of what he feels your diagnosis is. Osteo doctor wouldn't hurt. The Rheumy he wants you to see is not just for RA, they cover a wide host of ailments, including things involving the kidneys, such as lupus etc. What I'm trying to say is that a Rheumatologist may not be the doctor you need to stay with, but he may be your ticket in finding the right direction to go in. .They know more about
bones/muscleskeletal than most. I think Id try that route first. I wouldn't think Id be staying with him, but rather examined by him and explained what he thinks im looking at, for proper referral.
If you find that none of the offers work, I'd change general practs and be referred to a pain specialist, for they obviously see all types of chonic conditions, and would know what yours is. Depression/bipolar/anxiety can in no way swell or make skin purple, just doesn't happen. Mind is strong over matter, but not that strong .
Im so sorry your going through this. After much pain my family doc (young woman who looks very pristine) referred me to spinal rehab and from there we work on meds with injections.
Although she's right about an MRI being expensive. I think it's well worth it in your particular case. You say there's something just not right in your neck? It needs to be looked at so it can be treated or ruled out. It will always be a question of radicular pain unless the neck has been properly evaluated.
Hope you find your place of help soon!
Every day brings us closer to what we reach for .........in all things.
Post Edited (Kiera) : 1/8/2008 4:41:35 AM (GMT-7)