Posted 1/9/2008 1:34 PM (GMT -6)
Dear Hopeisreal,
 
Do you get any relief if you reach behind your head/neck with the hand opposite of your painful side....same movement with same side hand as souce of pain? I only ask because once I was finally diagnosed correctly my wonderful neurosugeon laughed when I described that as the only way to get a moment of relief from the pain in my neck, back, legs, chest and arms....he had me look out into his waiting room where several patients would eventually resort to the same movement. Turns out I had a pretty severe case of stenosis throughout my c-spine amongst other spine problems. Once he gave the spinal chord and nerve roots some breathing room it was as if he performed a miracle...wish I could say the same for subsequent surgeries. I just wanted to encourage you to keep asking your doctor the specific questions and seek other medical providers if they don't take your case seriously and treat it with a sense of urgency. I've been posting here for a couple days and although I'm not very good at it one thing I can share with certainty is my advice not to be a timid or passive patient. I went through 45 years of unspeakable misery and a pretty crappy quality of life because I didn't realize that my doctors may not be taking my problem seriously. After a week in the ICU being treated as a heart attack victim because my body was shutting down, a doctor making the rounds one night asked a rhetorical question..."what seems to be the problem"....I told him I couldn't say but I could show him what I'd been dealing with since the age of 4 or 5.....I struggled to my feet and moved my head to one side and tilted it back......I let out an awful gutteral involutary groan and fell to the floor limp. Once he composed himself and got me back on the table he said don't do that again.... He said he'd seen that before and he thought he might know what was causing it. After a few films from the view through my open mouth he confirmed his suspicions and started a battery of tests.....My spinal chord was being severly smashed by narrowing of the column and nerve root openings...I have this and other back problems from brain stem to tail bone but the closer to the brain the more urgent. Until being hit from behind in a car wreck i was actually doing very well based on the surgery. I share this not only to serve as a mental release for me but as a genuine suggestion to you. Don't suffer silently. Don't make the same 45 year mistake i did and accept doctors telling you there is nothing wrong with you just because they don't see blood gushing out of you. Many sources of extreem pain are never going to show up on a MRI, Ct Scan, etc.....Be assertive and find a doctor that will commit to helping you find the cause of your pain and get you the best treatment possible....I was the worst informed, ignorant, overtrusting patient in the world and i got help after almost 50 years of "it's all in your head"...dag gone right it was... my brain stem that is. Best of luck to you.
Posted 1/9/2008 5:07 PM (GMT -6)

See the rhuemotoligist they deal with chronic pain and inflamation all the time and even if you don't have RA they may be able to help.

Also keep a pain diary if you aren't already doing so rate your pain on a 1-10 scale once an hour and write down briefly what you did that hour It might help you and your doctor figure this out and it cant hurt.  Doctors like data.

Also if your doctor doesn't have a good atitude toward treating you get rid of him.

Posted 1/10/2008 4:54 AM (GMT -6)
Have they ever done an EMG on you? MRIs are good, but they can't pick up certain things, especially when the nerves are involved. An EMG could test you for something like thoracic outlet syndrome or any number of other neurological abnormalities. With the numbness, cold sensation, radiating pain, it seems like nerve entrapment or damage could be leading to your symptoms. Do you do any repetitive motion with your arms for work, for instance? Or have you been in an accident in the past?

I hope that sports MD doesn't just send you for more PT - sounds like you need some more work than that!
Co-moderator - IBS Forum

Posted 1/10/2008 8:00 AM (GMT -6)
i do repetitive motion stuff at home: vacuum, drive, housework---- and photography stuff on the computer (holding the mouse, etc..)----I have not been in an accident in the past----but, I was working out at a gym last spring---doing a lot of rowing, lat. pull-downs, military press, shoulder press, (and leg exercises too)---took a spinning class 3x/week. I think I injured myself there-------

I will ask about a cervical MRI and EMG when I go to the doctor---any other insight from ya'll would be good---I want to go into the Sport Med MD informed-----b/c it's pretty hard to get in and see him!

Laurel
Posted 1/15/2008 12:37 PM (GMT -6)
CRPS is a miserable hopeless pain which will increase and is incurable. Dr.s are mostly ignorant of pain in general and when it come to a choice of trating your pain and possibley losing there license, just guess who doesn't get treated. I know a doctor in the Chicago area who may be of help (if she has been scared off by the pain med gestapo(DEA},
MY email address is lbedwell69@verizon.net
Take it from a guy who's been dealing with chickensh-t "Doctors) for years, Pincushion1
God help us
Posted 1/15/2008 12:37 PM (GMT -6)
CRPS is a miserable hopeless pain which will increase and is incurable. Dr.s are mostly ignorant of pain in general and when it come to a choice of trating your pain and possibley losing there license, just guess who doesn't get treated. I know a doctor in the Chicago area who may be of help (if she has been scared off by the pain med gestapo(DEA},
MY email address is lbedwell69@verizon.net
Take it from a guy who's been dealing with chickensh-t "Doctors) for years, Pincushion1
God help us
Posted 1/15/2008 7:17 PM (GMT -6)
hi,  Just to let you know you aren't alone. My Dr. kept telling me that I was going to get better and now its been almost 3 years and every test known to mankind and still no answers. I have now paid privatley where I live to see the same surgeon that I was on a 36 month wait to get in and see. Funny how money talks.  My family dr has washed his hands of me.I have hit rock bottom and know the only way is up from here.  I have now gone to one of the best sports medicine hospitals in my area and am awaiting answers....if something shows up on these tests. All i can say is don't give up...we know our bodies and the pain we live with not the dr.  All the best to you

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