Welcome back GRAMPS!!!!

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Regular Member

Date Joined Dec 2007
Total Posts : 450
   Posted 1/11/2008 6:54 AM (GMT -6)   
Missed your wisdom while you were away. 
I hope your trip was enlightening for you and you found all of the answers you wanted.  Let us know how it went when you feel up to it.
xx~smooches~xx , Sue
Mochiah/a.k.a. Sue
cervical fusion 2006, with great result
L4-5 surgery with cages, plates, and screws in 2005, I have continued pain 
MEDS:  Fentanyl patch, Norco, Celexa, trazodone, and Parafon Forte
Im going to smile like nothing is wrong, act like everything is perfect, and pretend its not hurting me.

Forum Moderator

Date Joined Feb 2003
Total Posts : 16765
   Posted 1/19/2008 9:36 PM (GMT -6)   

Ah Gramps, I was so disappointed to read that your trip to the Mayo was all for naught. I, like so many others here at HW were hoping you would get some answers and help. What a disappointment I know it is for you. Do, they really think people can afford to to fly back and forth to their facilities at a drop of the hat, or just jump in a car and drive the distance, that really blows me away. Everyone I know thats been there had a complete workup before they left and they did not have return visits scheduled to finish a workup. WOW.

It has been quiet at HW since you left and you have been missed. You do offer great advice to many and you are always so helpful. As Bonnie said, we sure do seem to have a rash of peeps getting off their meds, some going cold turkey, which is just crazy in my book. Why subject yourself to more pain if there are other ways to do it, is beyond me.

I am like you like, this will be my life, but thats ok, because of my pump, I am able to function now, its a different level, but that ok too.

You must not give up hope, there has to be someone, somewhere out there that can help you. I sure will keep you in my prayers that help is not far off for you...Lotgs of gentle hugs coming your way....Susie

Veteran Member

Date Joined Sep 2005
Total Posts : 535
   Posted 1/20/2008 12:52 AM (GMT -6)   
Hi Gramps.

Glad to see your back even if somewhat.

I too am sorry to hear that you experience at the Mayo leaves much to be desired.

You'd think that somewhere out there someone would be able help

If you do ever find that someone let's us know tongue

I also agree with Susie they way the expect you to travel back and forth is unacceptable.

Do these doctors ever stop and think about people who live in the real world?

A physician I have chatted with online told me something that actually made sense. He said he more people weighing in on your case, if you are a chronic pain patient, the worse! This is an example of the distortion of Medicine. Usually, in most chronic illnesses, the more brains on the case the better.

Unfortunately when it comes to Pain Management, the less doctors involved, the better.

In pain cases, the more people involved, the more likely pig ignorant police propaganda and good 'ole plain public ignorance will sway the day.

I wasn't sure I agreed with him at first but the more I think about it and the more people I see suffer the more I realize how true his statement is.

Take care and I hope your pain levels stay low

Welcome back

Regular Member

Date Joined Aug 2007
Total Posts : 90
   Posted 1/20/2008 2:58 AM (GMT -6)   
Sorry to here about your experience over at Mayo. I know you had been hoping they would be able to do something better for you. Hopefully things will turn for the better in future. Its really too bad that did not work out.

I hope you arent feeling too bad, good luck and have a safe trip home.

Forum Moderator

Date Joined Jan 2005
Total Posts : 9245
   Posted 1/20/2008 6:43 PM (GMT -6)   

It's such a shame that spent so much time, money and energy for nothing. And these folks get by on their reputation, not their individual treatment. Sounds like they need to start treating patients, not building a bogus reputation.

Prayers and hugs for you,
Co-Mod Fibromyalgia & Chronic Pain Forums
Fibromyalgia, Ulcerative Colitis, Insulin dependent diabetic, collapsed disk, dermatitis herpetiformus, osteo arthritis in spine and other locations.

The only difference between genius and stupidity is that genius has it's limits. Albert Einstein: (1879-1955)

Veteran Member

Date Joined Jan 2005
Total Posts : 763
   Posted 1/21/2008 4:00 PM (GMT -6)   
welcome back Gramps . Mayo in MN doesnt even treat people with my disorders , so I can understand what you are going thru . Take care . Roz

Syringomyelia T4-T10
Chiari Malformation
Decompression Surgery 1999
"Remember That Life Is Short!!!" Life is short, break the rules, Forgive quickly, Love truly, laugh uncontrolably, And never regret anything that made you smile. <!-- / sig -->


Regular Member

Date Joined Oct 2006
Total Posts : 174
   Posted 1/22/2008 1:33 AM (GMT -6)   
Hi Gramps,
Just want you to know I have your luggage!!  ha,ha
sorry, I just couldnt help myself, anyway like everyone here, I feel for you for having to go thru a agonizing time. When looking forward to something so important and the feeling of just another letdown along with some agrevating ignorance becomes so old, so fast, so long ago.
 In other news, I just had my first visit to the Dellon Institute and had some positive results.If I recieve the same type of relief the next time I'm injected, she will consider a operation to cut the trunk of the nerve and stuff it into the muscle and who knows, it might defuse the whole problem. Dr. Virginia Hung could'nt have been more inteligent or understanding it was a comfort from the usuall hurry up we have 20 more people behind you waiting.
One more thing,
          I could'nt agree with straydog and yourself about the magnatude it is, just to be able to cook my 2 kids a dinner without them telling me "dad its okay take a break or we just can have cereal tonight" because of the apropriate meds, working like there supposed to be working, I can actually help do the things that are neede to help run our family. At least I know, no matter what, I will have somthing that will calm my nerve damage down, It is temporary, but I'll take it anyway...............
                                                                                    GO PATS!!!!!!!!!!!!!
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