I have two different types of pain, both chronic and neuropathic. My pain is disease related. Part of it comes from muscle spasms (just like Charlie horses people get in their legs) the rest is neuropathic (damaged brain). No matter what the origin, pain is pain. I was taking a variety of strong pain medications without complete relief. My PM physician suggested a trial of the SCS. I had a horrible time with the leads shifting around during the trial. In fact, I ended my trial early because I could not tolerate the erratic sensation from to drifting leads. I felt I experienced at least a 50% reduction in my pain. I had the SCS implanted with the standard subcutaneous leads. I have had it for over 2 years. The SCS is not the end all be all. It does not take care of 100% of the pain. I consider it one more tool in the variety of pain control options. It helps mask the pain. When you are experiencing horrific chronic pain, anything that helps control pain without drugging you to the point of being nonfunctional is a welcome treatment option. Some find the sensation pleasing, while it bothers others. If you are a candidate and are truly interested, it is worth doing a trial to see if it works for you and the sensation is something you find tolerable..
Dx: Rare progressive neurodegenerative disease called Multiple System Atrophy (brain rot, autonomic system failure, neuropathic pain and a whole lot more). Added improvements: Intrathecal pump and a spinal cord stimulator and a new brand new power wheelchair with shiney horn,.
Medications: Sinemet, Requip, Klonopin, Baclofen, Provigil, Lyrica, Fentanyl patches, Lidoderm patches, Dilaudid, Fentora and Zofran