Posted 2/1/2008 3:20 AM (GMT -7)
I guess pain is so relative. I always wonder what my pain would feel like to someone else. Would they think it is as devestating as it is to me or do I just have a lower pain threshhold...Does anyone else ever wonder that? Women are supposed to have a higher pain threshold because of child bearing. But still I never know exactly how to rate my pain with the scale. I guess because they ask and never seem to take it into much account unless your about to pass out on the floor!
 Interstitial Cystitis and Endometriosis

Posted 2/1/2008 5:21 PM (GMT -7)
They should use a little common sense. They should take one look at the pile of medical bills we each have or have had at one point and realize drug seekers would be getting there drugs on the street not putting themselves in unbelievable debt trying to get help...
 Interstitial Cystitis and Endometriosis

Posted 2/1/2008 8:19 PM (GMT -7)
Yes, I keep a journal, but not for my Dr or anyone, just as a release valve. Funny, but I just posted something from my journal here in this forum, fwiw. A bunch more is in my blog, but it's been down a bit this evening. Please mosey over to my latest post (after 6 months of silence here, at least!).

As for the DR's & others not 'getting it' and looking for the 'pill seeker' blame the legislators & the FDA -- they're the ones who've made it a crime to prescribe certain drugs 'in excess'. We need a legislator to craft a law that would not lump all pain meds users into one kettle of fish. But yes, it does drive me crazy (well, it used to, I don't even bother trying to explain my pain, I just say 'oh it's better than usual, maybe a 5 today' and even if they press I stare at them like I'm about to pass out (defocused gaze helps do that ;} ) and they move on to the next thing.

But I now get my care from the VA, and I have to say that so far, I've not had ANY trouble getting what I need. In fact, they wanted me to start oxycontin but I told them I'm holding off on that till absolutely necessary... They keep in my tramadol and I buy my own Cymbalta (in Canada for $154 for 3 months, when Walmart wants $250 for 1 month!) as the VA doesn't supply it yet.

But I digress...I've always felt that journalling, unlike a diary, should be not just a recitation of events & details, but reflection on the meaning and meaninfulness of them. It is funny too, to go back and look at something I wrote 25 years ago-- wow, scarey to think of how I used to think LOL.
[2}Dx: Post Spinal Fusion chronic pain since 1984;Polyneuropathy;Meniere's Disease, Left ear deafness & severe tinnitus on both sides, Left; Intmt Anhedonic depression;
Hx,Meds: donthearishoutyou.com/blog/

Posted 2/2/2008 2:13 AM (GMT -7)
Hi Obtuse!
I'm somewhat new to the forum..I'm glad to meet another cp poster!
I'm so glad the VA is so successful for you. My family is a military one and I've heard horror stories...but its nice to know that those stories dont include everyone.
You know what I've found helpful...doing an online blog. You get to vent and hopefully help a couple people who might wander onto it. Its a great release and keeps track of the days. Am I allowed to say the online site that lets you set one up for free?? I better not, dont wanna break any forum rules. But its been great for me! I wanted to post my online blog site in my signature but i dont know if that is allowed either:(
I do the same as you do...not even bother going into am explination anymore. I always say...I'm having a though time but dealing with it...It moves em on pretty quick. I try to save any explinations for the pain that I feel just may kill me!
Is canada like europe with medications...you can but them in the pharmacy without a script. I'm so irked that were the only country that had private insurance and some people cant get the meds they need. Over to the East for the most part all you have to do is show up at the pharmacy and they asses you there. The US should take a lesson...
 Interstitial Cystitis and Endometriosis
 

Posted 2/2/2008 7:51 AM (GMT -7)
Hazelb: I think you found out already, but personal blog (that are not commercial in nature) I think are fine.

The Canadian pharmacy needs an Rx and it takes longer to get it (manufactured in India, mailed to Germany, and then to me, less chance of interdiction that way I presume). I couldn't believe that I would pay $750 for 3 months at discounted Walmart prices, and $154(US) via the Canadian pharmacy. Unreal.

I look forward to reading your blog, so where is it? :}
[2}Dx: Post Spinal Fusion chronic pain since 1984;Polyneuropathy;Meniere's Disease, Left ear deafness & severe tinnitus on both sides, Left; Intmt Anhedonic depression;
Hx,Meds: donthearishoutyou.com/blog/

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