Sounds like youve been through alot gramps...well that goes for all of us too. I think we should all equally be proud of ourselves everday we dont give into our pain. Gramps I think you would like some of the info in my blog...I have written a small article on Narcotic Pain management. Although I focus alot on Interstitial Cystitis because it is still so commonly under treated with narcotics, its still for chronic pain sufferes in general. I believe the article is under "some common treatmenys"(really I should post it "some uncommon treatments") anyhow check it out
Mabakhrts...alot of people dont know much about
interstitial cystitis(IC), I had never even heard of it before it hit me like a ton of bricks! But somehow you can go into a sponanious remission for a day, week, year or for those lucky enough...many years. They dont know why or how. In IC there are rips and tears in the protective bladder lining, so the acidity and toxins in the urine are constantly brurning the underliying bladder wall. it comes in all sizes mild, moderate and severe. I have a severe case. So for me it feels like someone constantly rubbing salt or vinegar into an
open wound. Except its deep and internal so it fels that much worse. I'd say my daily pain level is at a constant 6 0r 7. 8 on my bad days and 5 on my good ones. Rarely does it get below a 5, although it has and I love those times!! When my endo puts its 2 cents in every month my pain is at a 9 and has closely reached a 10 althugh I go to the ER usually before I hit a 10...I cant even describe that kind of pain. The endo just makes it worse for me. Unfortunitly endo is pogressive and wont stop until menapause. Supposibly IC is not progresive, although thats still debated as EVERYTHNG with IC still is.
I was going to tell you yesterday that I can completely relate to you about
not being able to sleep in bed with your husband. I have ben married for 2 1/2 years and havent slept in bed with my huband once since my diagnosis. I know how it can feel and what CP can do to a marriage. I feel for my husband, I truely do. But I also feel for myself and have to be as comfortable as I possibly can. The old saying is true even if you have no kids(aklthough I do consider my cats my children) If the wife is unhappy everyone is unhappy. Just wanted to let you know your not alone.
I have my whole story and some info on my web blog at www.icangel.wordpress.com you are more than welcome to check it out.
Interstitial Cystitis and Endometriosis