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Regular Member

Date Joined Feb 2008
Total Posts : 34
   Posted 2/25/2008 2:34 AM (GMT -6)   
  Hi, I have been in Chronic Pain for over 14 years, and was treated with only Flexaril, and Benzodiazipenes to help me sleep and to relax my muscles during the night, so that I would wake up in less pain. What a Joke!
  I was injured on the job and developed Fibromyalgia rather quickly, I have had Knee surgery and continue to have knee pain, Sciatica, Ankle Reconstruction with continued pain, Coccydynia, Shoulder surgery to joint resulting in Frozen Shoulder, and now supposedly Bursitis, along with a bulging disc in the lumbar region that bulges and goes back into place on it's own etc. If I write anymore I will feel like a Hypochondriac!
  Was in the Medical Field like Ruth Thomas, though different professions. I won't list mine because it really doesn't matter what I did, just that I was injured doing it and can no longer do it, because of the Fibromyalgia.
  I have only been given pain medication for over two years thanks to my primary doctor, who treats my Fibro. I'm on Oxycodone 10 mg ER three times a day, but I only take it twice a day. I want to come off since I have been on for over a year now. I know I'm not addicted, but it doesn't seem to be helping, so why pop another pill? I also take Oxycodone 5mg with a Regular Tylenol (2 tabs every 4 hours as needed), which I desperately still need. Even though I have gotten a Muscle stimulator and a TEN's Unit.
  I was really hoping that the TEN's would help more than it has. I'm very frustrated right now, and I hate to complain, but don't know how to handle this much pain! And it has been going on for a long time now. I do see my  Orthopedic Surgeon tomorrow. Hoping he will inject my shoulder with Cortisone. Anything to help this pain.
  I have never slept well, but this lower back and shoulder pain have me awake every 20-30 minutes once I do fall asleep. Sorry to go on and write a book! Guess I needed to rant a bit. Well thanks for listening.

Regular Member

Date Joined Nov 2007
Total Posts : 460
   Posted 2/25/2008 3:09 AM (GMT -6)   
Glyn: Keep on ranting and raving too, if you want your in the right place. I am not allowed to take any meds. for pain not even a tylenol. I have three types of arthritis lower back constant. Three upper spine ruptured disks with arthritis beginning on them, knees bone on bone, bone spurs on heel,......So youve come to the right place .My pcp told me I could try a lower dose of oxycodone for pain since I reacted to it a while back. I hav'nt yet tried it I'm afraid it will make my other condition worse. I can't get to sleep till around 3:00am then I wake up around 7:00am and am totally messed up all day. Dr. finally broke down and gave me a pres. for something to help me sleep,because I nagged him so much. Haven't tried it yet , it's been over a month that I mail ordered it and it's lost some where so now if I do get it I will have to pay for the second order and I don't even know how I will react to it . So I may get stuck with another 6 months of useless drugs. If they don"t work. My limit is up. Enough of me. Keep posting we all listen even if we are of no help . What's a TEN's? --------june

New Member

Date Joined Feb 2008
Total Posts : 2
   Posted 2/25/2008 10:27 AM (GMT -6)   
I take oxycodone for my pain.  It got rid of most of it, but there was always a underlying nagging pain left even after taking the pill.
I purchased a jar of "Australian Dream Cream" and had hubby rub it on area on my back that was still hurting and that pain was instantly gone!
I'm not promoting the product, only stating that it worked for me, allowing me a little time to be 'pain free'!  It has emu oil in it.

Forum Moderator

Date Joined Jan 2005
Total Posts : 9255
   Posted 2/25/2008 12:09 PM (GMT -6)   
Hi Glyn,

I sure do understand not wanting to be on pain meds. I hate them, but I hate the pain more so I do take oxy and percocet. The side effects are miserable if you don't keep on top of them but you can manage. If you're still in pain take some time to think about your decision on stopping medication. I'm not trying to push, but don't let the media or rumors stop you from taking something that will greatly improve the quality of your life. That's what my doc and I talked over. He's into having some quality of life and if it means taking pain meds each day, then so be it. He doesn't push, but offers along with a lot of info and a strong shoulder to cry on if need be. I am blessed to have a great medical team.

June...a TENS unit is an electrical stimulation device that "exercises" the muscles with impulses. Here's a link

Hope this helps,
Co-Mod Fibromyalgia & Chronic Pain Forums
Fibromyalgia, Ulcerative Colitis, Insulin dependent diabetic, collapsed disk, dermatitis herpetiformus, osteo arthritis in spine and other locations.

The only difference between genius and stupidity is that genius has it's limits. Albert Einstein: (1879-1955)

Forum Moderator

Date Joined Feb 2003
Total Posts : 16795
   Posted 2/25/2008 1:25 PM (GMT -6)   

Hi Glyn and welcome to Healing Well. You have found a great place to come to for support, tips, a place to talk about things in your life that family doesn't understand or have a rant, I think you get the idea.

No you are not a hypochondriac, although I think at some point in the beginning we tend to feel that way once in a while. You have physical problems going on, a hypo has nothing.

I too am like Chutz, I would rethink my medication situation. If you stop all meds do you really think you can handle the pain day in and day out. None of us like being on medication by a long shot, but sometimes this is the only way some of us can cope or make it through a day.

You are lucky your PCP is giving you meds. Have you ever thought abut a consult with a pain mgt dr. Of course there you may have different types of injections recommended and medication to get you functioning on a better level.

I had a pain pump implanted June 05 and thats the best thing that has happened to me in ages. With the pump my quality of life is much better. I am able to do small things and actually feel as if I made alot of progress. I hope you will hang out here with us, we really have a great group of people on here.


Regular Member

Date Joined Feb 2008
Total Posts : 34
   Posted 2/26/2008 8:57 AM (GMT 0)   
I have already been to a Pain Clinic for the Coccydynia where I received a total of two shots of steroids under X-Ray to the bundle of nerves that lay below your Coccyx. Embarrassing but I was desperate. The first time
it helped for a few weeks and the second not at all. At the time I was there I gave them my total Medical History. Yes, I admit I was hoping that they would be able to help with the daily pain I endure, but the Specialist said
"There is nothing we can do to help the Fibromyalgia pain". He was nice and all, but I do have actual injuries and wish he had looked into the lower back pain a little deeper. I cancelled my appointment with my Orthopedic
Surgeon today because I was so sick last night. Luckily I was able to reschedule next Tuesday. Not too bad a wait.

Thank you all for the welcome. It was very nice of you.


Regular Member

Date Joined Feb 2008
Total Posts : 138
   Posted 2/26/2008 5:11 AM (GMT -6)   
Hi Glyn and welcome tot he board! Sorry to see your having such a time with your pain issues and certainly hope you find some relief sometime soon.I too have unrelieved knee pain from several surgeries so can feel you there.
I am glad to see you found a place to come to and many times the little things you will find here brings as much relief as some of the more standard forms of medicine and these little things usually come from experience.
I am a firm believer in heat anyway you can get it! Am game at times to try anything no matter how out there it seems to me but no matter what the meds I take are necessary for me to get up and keep going and to prevent me from venturing to those "Kevorkian" moments,my way of saying the pain is far more then I can handle at that time. Been there alot in the early days of trying to find suitable help in treating my pain. Not so much in the last few years after finding a happy medium with my meds and a what works for me dosing.
So many times so many people come here untreated or undertreated and most of the time it is a controlling factor of a source other then the person and many times his Doc but more the fear factor of the consequences of treatment. Sad to think isnt it?
Wont get on a rant in this your first post to us but the best advice I can give you is talk to your Doc and if he isnt listening to you begin a search for another. They are out there and it may take days or weeks or even years to find one that works with you not against you but once you find the right one your life will be at a much better place. I might add here that we tend to have to overcome the fear factor ourselves here a bit too as we tend to be molded in our thinking of the "addiction" problems that may arise out of the use of meds and the stigma attached to the uses as well and at some point the pain will certainly help overcome the reluctance but alot of us still carry the guilt with us that we should have been strong enough to handle this without all the pills! Dont let that way of thinking force you into to living with pain that you deserve to be rid of. Us in the field have a high rate of using this guilt to suffer needlessly for a long time.
Good luck to you and hoping you continue to come here and find some comfort and understanding.
2 knee replacements & a hip.
spondylosis at L-4,5 & S1
arthritis,sciatica all that being a CPer entails!
If you stumble make it part of the dance!

Forum Moderator

Date Joined Feb 2003
Total Posts : 16795
   Posted 2/28/2008 4:02 AM (GMT -6)   
I forgot to mention in my post. Alot of folks get their Fibro treated by a rheumatologist. Its hard finding drs that are willing to take care of all the issues and we end up seeing several drs. But, if that is what it takes to get the necessary care we need we just have to do it or suffer. I prefer not to suffer, I have done enough of that already. Susie

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