Wow! I can't believe that a whole week has gone by so quickly. Things have just been so hectic and I've run out of pain meds on top of it all. Sigh. I was hoping that my refills would come through quickly but Express scripts still doesn't have the order listed under my account. I'm going to have to get my Doc to write me a few days worth to get me through which means I'll have to pay the FULL cost. Since I've been using the mail in program, I've only had to pay a co-pay, but at a pharmacy, I have a deductible. Just what i need, another expense when I am barely keeping up with my co-pays, bills and gas.
Susie, I hear ya about having to switch meds because of the costs. I get my meds in 60 day supplies and have several that have $40.00 co-pays. Express-scripts is kind enough to allow me internet access to my med list only if my current balance is below $150.00. Well, heck, that's like almost NEVER! This change in Oxycontin just adds another med to the $40.00 list. Then there are the antibiotics that I need to keep available as back up because I'm immunosuppressed. Most of those are $40, and the Pentasa, which I could easily purchase at my local pharmacy for $135 per month and that's AFTER the deductible is met. But hey, one mont h of that should meet my deductible! LOL
You asked how I'm doing being out of work. Can you imagine that it's now 2 1/2 years since I had to stop working? Meanwhile, my Docs are still arguing about my Dx and I've had several new ones tacked on, including a genetic disease called Hemochromatosis. Apparently, my intestines allow too much iron to be absorbed and then my body deposits the excess in my organs, joints and other tissues. Now they're wondering if this is not the root of my problems. At this point, I don't even care! I just want to feel better and I'd really like them to make a decision because I have finally at least gotten them to agree that I should apply for SSDI. It's almost pathetic that my Primary, PM and Rheumy all code my chart as Crohn's, but the GI is still calling it "Keah's Disease".
I'm now convinced that my pain meds aren't doing much for me. I've been down to 1 pill a day for the last 3 days and I'm usually at 2 twice a day. I've got absolutely no symptoms of withdrawl, so I seriously suspect that I've hit a level of tolerance after being at this dose for the last 3 years. I just kept on taking my meds and assumed the pain was getting worse, Silly Me!
UUUGGHH! I had forgotten how nice this place is, to be able to talk about what's happening to me and have people really understand what I mean. I just hope that all the other things in my life will allow me to keep getting back here again.
Thank s for listening.
Keah a.k.a. Wormy
God helps those who help themselves.
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