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Shelter Regular Member Date Joined Feb 2007 Total Posts : 155	Posted 3/13/2008 11:47 PM (GMT -6)
	After many months of pain and struggle, time off work, etc... and finaly on a back to work prorgam// along with phsyio... seeing some improvement, I had a set back... after seeing the specialist Phsio OT was doing a SCAN on me having me lift some weights and test my Ability... well,.. i felt this awful crunch in my left SI joint.. and the PAIN!!!!!!!!!!! the rest of that day this week that has follwoed, has palced me into severe pain again but now on the other side, although the first side injured.. and falred up is also paining now.... the Specialists advice keep working, walking, moving no restruictions I can hardly step or sleep thats why im up at 2:43 am (my time).... pain i need some releif from this sharp..... pain.... excercise doesnt help at this point jsut living hurts... siatic pain stabbling . sudden bolts of excruitating pain... plus a lower back pain... which alsomost makes me naseaueated.... Iam fustrated now angry Dr's......... with all their studies... can FEEL the pain to know dont move...... Im gona pass out or sometimes my leg just gives out from under me... i cant weight bare tongiht i got up.... feeling a lot of pain,... walking or siting or laying pain pain pain not just ahurt,,, or its sore... its PAIN.............. like I cant live like this pain... some one? They that wait upon the Lord shall renew their Strength, they shall mount up on wings as eagles, they shall run & not grow weary, they shall walk & not faint..." Ish 40 v. 31 ~ Sjrogrens Syndrome, Asthema, Chronic Fatigue, Chronic Pain, Head aches, Migraines, Gastro Intestinal Problesm, Fibro Myalgia ,Kidney Stones* Esophegial Spasms,( L4 & L5 Vertebrae Misaligned,* Spinal Stenosis and Degenerative Disc Disease , Bulging Disc, anterolisthesis L4 L5 , caused by osteoarthristis , slipped Disc, bone spurs, causing pinching or pressure on spinal chord...), ~ Medications: I am TAKING Lorazepam 1 mg works well when I am in pain.... and Robaxacet as needed Tylenol Arthritis as needed ,vitamins B complex, Calcium & Magnisium, extra Vitamin D ,Garlic,Acidophilous, I am NO Longer taking Endocet,(oxycodone HCL) Cyclobenziprine, Amitripline, Celebrex 200 mg ,Rhodiola RX (GNC brand) , Back to Top

gardenrat Regular Member Date Joined May 2007 Total Posts : 82	Posted 3/14/2008 12:06 AM (GMT -6)
	Go to the ER. Stupid doctors. You need a MRI on that joint asap. Back to Top

notnu2cp Regular Member Date Joined Feb 2008 Total Posts : 138	Posted 3/14/2008 2:26 AM (GMT -6)
	As bad as I hate those places I have to vote for the ER as well. Sounds as if something has gone very wrong and the sooner you know it the better. I am so so sorry your having such a time with this and if I may ask with all your DX why the good list in your siggy is the NOT taking list? Please dont sit on this as I cant see it getting better soon enough to hang onto your sanity from the sound of the amount and types of pain your having and anytime you lose balance or your legs just give out there is something way wrong. Good luck and try to keep us informed and let us know how your doing. 2 knee replacements & a hip. spondylosis at L-4,5 & S1 arthritis,sciatica all that being a CPer entails! MEDS:methadone,zanax,zanaflex,indocin,maxide,lexapro,K*,inderal,zestril If you stumble make it part of the dance! Formerly Ruth Thomas Back to Top

lakewinds Regular Member Date Joined Feb 2008 Total Posts : 60	Posted 3/14/2008 3:41 AM (GMT -6)
	Hi, Well I may not have all the things that are wrong with you, But I still have chronic pain, depression, and I am Bi-polar. I am up at 3am every morning. EST. Y don't you come to the chat rooms and we can talk.My name is knitwit cause I like to knit and sometimes I have a quick wit. But you can call my connie or witty or knit I don't care just come to the chat rooms in the earley morning.Maybe we can keep eacj other company. good luck. signed Knitwit Back to Top

PAlady Veteran Member Date Joined Nov 2007 Total Posts : 6795	Posted 3/14/2008 12:13 PM (GMT -6)
	Oh, how I can relate, Shelter! I've been having a horrible week, after I thought thinigs were stabilizing a bit. And at least partially relating to SI join issues on top of still trying to heal from lumber fusion surgery. By the way, I've been told that SI joints can't be seen on an MRI. Not even sure they can see them clearly on X-ray. I'm lucky enough to have a physical therapist who knows how to determine if they're out of alignment, and he gentley puts them back in place, which he did for me on Wednesday, but overnight all I did was roll over in bed and I could feel them go out again. And you're right - the pain! And mine also have been causing problems on the left side, which was my "good" side (relatively speaking) in addition to the right side. All started last Monday when all I did was turn a little in the shower and felt the muslces on my left side all tighten, and haven't been able to get things settled down since. Took extra percocet yesterday for the first time since my surgery. You're right it is scary. I have an appointment with my neurologist next week, so if things aren't better I will talk to him. I'm just praying it's muscle that will ever so slowly relax. Since I've used up all my PT sessions, my godsend of a physical therapist is seeing me once/week at no charge, but he's only doing limited modalities for about half an hour. If only I could go back to 3X/wk to get this settled down. darned insurance limitations!!!! (sorry for my french, folks, but I know you understand) Anyway, Shelter, I agree with the ER recommendation if you can't get in to see your doctor soon. My pain isn't yet as bad as yours, as I was able to sleep some loading up with meds. Please let us know how you do! Back to Top

ryand Veteran Member Date Joined Dec 2007 Total Posts : 639	Posted 3/14/2008 6:38 PM (GMT -6)
	Oh, Shelter I feel for you. It is so clear in your post that you are overwhelmed by the pain. I hope by the time you read this that you have been to the ER and they were able to help you find relief. I hope you are sleeping peacefully right now! Back to Top

Shelter Regular Member Date Joined Feb 2007 Total Posts : 155	Posted 3/14/2008 6:40 PM (GMT -6)
	HI everyone thanks for you notes... today I had 5 appointments... 1) chiro - he did some adjustments & recomended a Sac/ SI jiont lower back support// jsut waiting for WCB to approve buying it I also picked up some ice pacs... 2) saw the Psycologist at the Phsyio Clinic.... we talked for an hour she thinks i need to also find pain releif & also... maight need to find a differnt line of work..... considering how i am being trated 3) saw my own GP , Dr. recomended I take 1/2 percot at night & try that to see if that helps with sleep and pain... she understand sit zonks... so i would make to work ontime.. being so drugs but she wont put me off work, since th back pain specialist recomends for my therapy to WORK!!!!!!!!!!!!! i am thinking this man needs to FEEL my pain... sorry but really seriosuly he needs to experience PAIN that makes you want to be dead... 4) saw Phsyio Therapist next-- she gave me a lite gym day only upper body.. then heat treatment & Tens.... 5) saw dietician who is advising me to eat better & loose about 130 pounds longggggg day lots on my mind if I get really bad pain again i will go to ER and hopfully I ca get something by IV to relive pain.... exptreme right now... im in a tolerable pain tongiht thanks again for writtign to me .. it helps ifI am up at 3 am i will go to chat i am in the Atlantic.... so its 9:30 pm here... as I write this... - ttfn They that wait upon the Lord shall renew their Strength, they shall mount up on wings as eagles, they shall run & not grow weary, they shall walk & not faint..." Ish 40 v. 31 ~ Sjrogrens Syndrome, Asthema, Chronic Fatigue, Chronic Pain, Head aches, Migraines, Gastro Intestinal Problesm, Fibro Myalgia ,Kidney Stones* Esophegial Spasms,( L4 & L5 Vertebrae Misaligned,* Spinal Stenosis and Degenerative Disc Disease , Bulging Disc, anterolisthesis L4 L5 , caused by osteoarthristis , slipped Disc, bone spurs, causing pinching or pressure on spinal chord...), ~ Medications: I am TAKING Lorazepam 1 mg works well when I am in pain.... and Robaxacet as needed Tylenol Arthritis as needed ,vitamins B complex, Calcium & Magnisium, extra Vitamin D ,Garlic,Acidophilous, I am NO Longer taking Endocet,(oxycodone HCL) Cyclobenziprine, Amitripline, Celebrex 200 mg ,Rhodiola RX (GNC brand) , Back to Top

PAlady Veteran Member Date Joined Nov 2007 Total Posts : 6795	Posted 3/15/2008 12:42 PM (GMT -6)
	Shelter - sorry I didn't "recognize' you in the chat or I'd have asked how you were doing. I'm lucky I can remember my own name some days! I certainly hope you're doing at least a bit better today but you sure did have a LONG day! People don't realize what all our appointments and treatments take out of us. It's as demanding as any job, and without any pay! Back to Top

Shelter Regular Member Date Joined Feb 2007 Total Posts : 155	Posted 3/19/2008 5:35 AM (GMT -6)
	Yesterday was a BAdddddddddddddd DAy had trouble walking by end of day was all i could do to sit during a meeting at work, and try not to let them know how much pain I was in... I slowly did some of my work tasks.... I visited paitients, and also did some paper work but by the end of day I was to go see hte dietitican at eh phsyio Clinic Im being helped that way also (one of my 5 appointments) I must loose wight,... my body doesnt want to carry this load bones & msucles are rebelling any way aft3er sitting in that appointment i stood up and WOW the pain standing at the appointment desk.. my legs both of them went numb..... and later that day I went back to see the Phsyio Therapist she did acupuncture on my back to see if that would help since I ahve had months of ultra sound & tens.... & ice.... by evening I took a 1/2 a percocet.. which in about 1.2 hr had me smileing.. in lower pain.... got kinda zonked by bed time.. had werid dreams... really weird... i woke up middle of the night gain at 3 am I could have come online but choose not too I lay there.. trying to go back to sleep it hurts jsut laying down hurts sitting hurts walking sooo pain all the time... I took another 1/2 percocet makes me feel.... edgy ?? cranky?? and for a few minutes I didnt feel so good when kdis went off to school but now its kciking in and I feel myself getting sleepy.... almost..." zoned" // i dont like this feeling but its better than pain I supposed when pain is intolerable had to call in to both my jobs today & tell them I wouldnt be ther due tp back pain maybe chat with someone on here later ttfn They that wait upon the Lord shall renew their Strength, they shall mount up on wings as eagles, they shall run & not grow weary, they shall walk & not faint..." Ish 40 v. 31 ~ Sjrogrens Syndrome, Asthema, Chronic Fatigue, Chronic Pain, Head aches, Migraines, Gastro Intestinal Problesm, Fibro Myalgia ,Kidney Stones Esophegial Spasms,( SI joint, low mechanical back pain..... L4 & L5 Vertebrae Misaligned, Spinal Stenosis and Degenerative Disc Disease , Bulging Disc, anterolisthesis L4 L5 , L4 -- S1 pain caused by osteoarthristis , bone spurs, causing pinching or pressure on spinal chord...), ~ Medications: I am TAKING Lorazepam 1 mg works well when I am in pain.... 1/2 tab at night of Endocet,(oxycodone HCL) .....and Robaxacet as needed Tylenol Arthritis, Advil as needed ,vitamins B complex, Calcium & Magnisium, extra Vitamin D ,Garlic,Acidophilous, I am NO Longer taking Cyclobenziprine- gave me BAD night mares... terrible awful nightmares... Amitripline, was used for rash, and head aches... dr. stopped RX.... Celebrex 200 mg- gave me excruiating MIGRAINS daily... was not able to function..... Dr. stopped RX .... ,Rhodiola RX (GNC brand) tried for a short time.... might try again , Back to Top

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