joint pain and Avascular necrosis

New Topic Post Reply Printable Version
[ << Previous Thread | Next Thread >> ]

Buckeyeinfl
Regular Member


Date Joined Oct 2006
Total Posts : 114
   Posted 3/26/2008 3:29 PM (GMT -7)   
Hi everyone,
I posted over in the arthritis forum, but thought I'd post here as well since I'm not sure where to look for answers.  My daughter was recently diagnosted with avascular necrosis (aka osteonecrosis ... meaning bone death) of both knees and her right elbow.  I am looking for anyone else on these boards that have this and what treatment course they followed or any other information you might have for new treatments.  We've seen three orthopedic surgeons (one at the MAYO...grrr who was not helpfut AT ALL) and just found a specialist in Baltimore that I pray will give us some hope. 
 
She developed this from using Prednisone to try to get a severe attack of ulcerative colitis under control (did not work, ended up with a colectomy and a jpouch)...but now are told that her joints will eventually collapse and need replacement surgery.  What the docs don't tell you about the dreaded Pred mad    We knew about the possibility of osteoporosis, but not that her bones could die! Anyway, thanks for listening to me rant and I hope I hear from anyone that can give insight to treatment options. 
20 yo daughter w/ Pancolitis
diagnosed 8/30/06
Step 1 colectomy/jpouch creation 11/27/06
Step 2 takedown 2/9/07
VSL #3
Daughter diagnosed with bilateral knee AVN
and right elbow AVN


Ides
Forum Moderator


Date Joined Nov 2003
Total Posts : 7119
   Posted 3/26/2008 4:30 PM (GMT -7)   
I replied to you over on the arthritis forum.
Moderator Crohn's Disease Forum
CD, Ankylosing Spondylitis, small fiber peripheral neuropathy, avascular necrosis, diffuse connective tissue disease, Sjogren's Syndrome ?
 

New Topic Post Reply Printable Version
Forum Information
Currently it is Saturday, November 18, 2017 6:18 PM (GMT -7)
There are a total of 2,895,193 posts in 317,775 threads.
View Active Threads


Who's Online
This forum has 157376 registered members. Please welcome our newest member, marcusz.
306 Guest(s), 12 Registered Member(s) are currently online.  Details
Crispix, 81GyGuy, buffalo, Admin, Charlie55, Pratoman, mspt98, Terry's Cellar, InTheShop, FLBeachgal, WifeofPie, 00hope00


About Us | Advertise | Donate
Newsletter | Privacy Policy & Disclaimer
Follow HealingWell.com on Facebook Follow HealingWell.com on Twitter Follow HealingWell.com on Pinterest
©1996-2017 HealingWell.com LLC  All Rights Reserved.