Hello again to LPHS'ers!!
I recentley posted again after a very long time of hanging out on the board but not actually seeing to much posting on LPHS..
I think that it would be great for all of us,or anyone thinking that
they might have this disease, to start posting again.
This disease is so rare and undertreated sometimes, that to just
know that their are others out there makes me feel stronger to know that I do not face this alone.
I would love to see more posts and questions that might help each other out a little understanding this ugly disease.
Unfortunaly, I also suffer with Lupus along with LPHS so I am not
always feeling well enough to always be on here. However, please
let us all try posting end e-mailing each other as much as possible. Maybe we can master up a chat time to for all of us to participate in?
Please let me know if anyone is interested in any of these ideas and how many would be willing to participate.