Chrohns Disease Pain

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New Member

Date Joined Apr 2008
Total Posts : 2
   Posted 4/8/2008 7:13 PM (GMT -6)   
Hello Everyone: confused
I am rather new to this site, but certainly not from terrible pain in my upper and lower GI tract due to Chohn's disease.
Currently, taking Remidcaide via IV every 8 weeks with a daily dose of Nexium.
However, my pain levels continue to be a problem and are increasing.  Use to be 6 or 7, now easily 8, 9 and sometimes 10.
Does anyone have any advice of options I should discuss with my doctor(s) to try and incorporate better, stronger pain management medicines so I can have a better quality of life with less trips to the emergency room when the pain gets out of hand.
Thanks a million everyone.

Veteran Member

Date Joined Jul 2006
Total Posts : 6927
   Posted 4/8/2008 7:37 PM (GMT -6)   
Crohns can give you chronic pain but it sounds like it is time for stronger pain meds if your gi doc won't do it then what about your primary doc? There is a reason they put us on morphine when we go thru the doors of an er.
Crohn's Co-moderator

We will find a way, or make one.-Hannibal (crossing the Alps in the 15th Century on war elephants)
Praise in public, chew in private.
Make sure your suffering has meaning....
All suggestions/options/opinions are caveated with please consult with your local health care provider...

Regular Member

Date Joined Jan 2003
Total Posts : 492
   Posted 4/9/2008 6:06 PM (GMT -6)   
I noticed you didn't list any sort of pain meds. Have you asked your GI for pain medication? I know if I were in a state of 6 or7 on the pain meter I certainly would not be able to tolerate it for more than a day or two. Back in the early years for me prior to fibro I pretty much had Tylenol #3 on hand for the days my belly hurt the way you have described. You really need to discuss the pain management issue with your Doc.
Good Luck and hope you feel better soon.
Dx'd with crohn's 1983, resections 83,85 and 89 Double Strictureplasty 2005, Dx'd COPD 2000, Psoriasis 2002 and Fibromyalgia 2005.
Currently takeing Humira, Pentasa, Lomotil, Elavil, Sinemet, Skelaxin, Advair, Abuterol, Oxycodone and Xanax as needed

Veteran Member

Date Joined Nov 2003
Total Posts : 7314
   Posted 4/11/2008 12:11 AM (GMT -6)   
Hi Seekinganswers and welcome.

GIs are notorious for failing to treat the pain related to Crohn's. Most are too afraid of the constipating effects that narcotics have (which most of us benefit from), terrified of addiction and end up telling us that we just have to learn to live with the pain we have. Well, as far as I'm concerned that's a load of HORSEPUCKIES! Any Doc who says that to a patient should have to suffer their pain for a month and then see how they feel!!!!!!!

In between having Crohn's suspected and getting the real Dx, I was getting my pain meds from my Primary Doc. As time went on, the arthritis most often associated with IBD, Spondyloarthropathy (SpA) reared it's ugly head and my joint pain got so bad that I was miserable. The Vicodin which wore off in 4 hours just wasnt cutting it and didn't allow me a full night's sleep, so I self referred to a Pain Mgmt Doc who I knew from the hospital I was working at. He got me on long acting meds and although I had to try several, Oxycontin was my answer to both problems.

So, if your GI and Primary won't help you to find the relief you need, get a referral to a Pain Doc. Aftre all, they really are the best suited to treating pain. I certainly wouldn't have an eye doc treat my Crohn's, why would I expect a GI to treat my pain?

I hope you find relief soon and that you pop into the Crohn's board here at HealingWell. It's great to be able to talk to others who are suffering the same problems that you are.
Keah a.k.a. Wormy
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New Member

Date Joined Apr 2008
Total Posts : 1
   Posted 4/16/2008 9:15 AM (GMT -6)   
I was told that I have UC (much like having Crohns) a couple of years ago and suffer from unbearable gut pain almost every day....My GI doc also has the attitude of "Its all in your head"
I am now with a pain mgt group and Fentanyl Citrate pops have been my life saver...

Elite Member

Date Joined Jan 2005
Total Posts : 24909
   Posted 4/17/2008 7:14 AM (GMT -6)   
HI there
I also believe that those with crohns have to have their pain addressed and done right
I take Ms Contin ( morphine) with percocets for in between pain.......I too got mine from family doc my GI would not touch the pain meds part of my crohns
Please talk to your doc
NO one should live in pain....IMHO

  DX With Crohns,Pyoderma Gangrenosum, Anxiety/ Panic and Other Disorders
Moderator @ Anxiety Panic..Alzheimer's..Co mod @ Crohns

Becoming undone
Veteran Member

Date Joined Jul 2007
Total Posts : 927
   Posted 4/17/2008 7:18 PM (GMT -6)   
After my surgeries and constant pain (I believe that I have adhesions from prior flares), I am seeing a pain specialist. The fentnyl patch has allowed me to be human again instead of curled up in a ball on the bed. It also has the nice side effect of slowing down my GI system (score!) so I only have to go maybe 2 or three times a day. You don't have to live in the pain...Oh, and I hate's so much better to be able to treat yourself at home.

Regular Member

Date Joined Nov 2007
Total Posts : 99
   Posted 4/18/2008 10:47 AM (GMT -6)   
Please tell me how to approach a doctor about better pain relief.....
My husband suffers from Crohn's related pain; he has had every test imaginable but nothing shows up that could explain the pain.  He takes:  Pentassa x9 pills daily; percocet x6 pill daily (2 pills every six hours, but not a does at 6am); Remicade (still on induction).
He cannot walk, sit, stand comfortably; forget driving more than 5 minutes!  He has been on the percs for >6mos and his pcp is at a loss.  He has told us that there isn't anything more that he can give.  He tried giving us a referral to pain management, but at the time (we didn't have a DX of Crohn's at the time) they would not even speak to us without a diagnosis.
Yet, I see so many ppl here having their pain treated.....should we push his pcp for someting or should we try the pain management group again since we have a DX now?
Any advice is appreciated.
Learning can only happen when a child is interested.  If he's not interested, it's like throwing marshmallows at his head and calling it eating.  Make him interested!

Elite Member

Date Joined Apr 2004
Total Posts : 23551
   Posted 4/18/2008 11:23 AM (GMT -6)   
Newcrohnswife, I personally would take the problem directly to the pain management doctor now that he has a diagnosis. They are better equiped to know how to deal with all things related to pain.
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