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Sciatic nerve and Adenomyosis

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Chronic Pain
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plsnomore
New Member
Joined : Apr 2008
Posts : 2
Posted 4/8/2008 5:45 PM (GMT -7)
Hi everyone! I promise I will try to make this short.
Was healthy all my life, until the day I turned 40 my whole life turned the opposite way! I was diagnosed with what they called a BRAC I gene I believe, anyways produces breast cancer, so they suggest that I go on a drug called Taxoflim, I had no problems on that drug, the only thing that happened to me now at this time was a horrible what they called Sciatic nerve problem, it was very painful! Soon after I stopped my five year treatment of the cancer drug, I do not have cancer; I started having these strange pains. My belly whole explode I went from 1 month PG to Nine all within an hour, I was scared to death! I didn't say much to anyone until it got so bad, I couldn't stand it, Went to the Gastro Dr, he said you have IBS increase your fiber and you will be fine, if not come back. Two weeks later I was in my GP office screaming for help, I was sent for a CAT scan and hold patient orders...They let me go home; I was puzzled and still in incredible pain I don't even wish the devil to deal with. Finally the next day on for an Ultra Sound where they found the cyst and my OBGYN said I know it is Endometriosis...Not for sure, but pretty much. I had no problems growing up like I said before not really, only getting P. G was a trick for us. So we did a complete Hysterectomy last August. Guess what the sciatic nerve problem the very painful muscles were gone, like magic.

Things were Ok, until I started with some pain in my hip, then it get worst to the Rueothmogist (Sp) and another MRI the Disc, which I do have a bad one, is fine, actually showed improvement since the last time...So what is causing the pain? Well didn't really know sent me on my way with pains meds and come back for Steroid shots when needed...

The pain is intense now...I called my OBGYN and off the Neurothgist I go on Thursday of this week! I'm very nervous about this, how much more can one deal with? Really???

I got a copy of my pathology report today it mentions no Endometriosis at all.

It does mention Adenomyosis on sections of the myometrium...

So I goggled it at work today and something about Sciatic nerve and Adenomyosis and how to procedures need to be done???

Has anyone ever heard of this or had nerve entrapment with endo/adenomyosis problems...

Sorry I really did try to make it short.
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TexasJen
Veteran Member
Joined : Dec 2006
Posts : 649
Posted 4/8/2008 7:12 PM (GMT -7)
Adenomyosis means that you had endometriosis in the wall of the uterus. That makes the entire uterus enlarged and "boggy" (for lack of a better word). Endometriosis means that the cells that line the uterus are found anywhere outside of the interior of that organ. It can show up as adenomyosis (within the walls of the uterus) and anywhere in the abdominal cavity. Those cells become very irritating where they implant, and as time goes on scar tissue develops as a result of the body trying to heal itself from an invader. The adhesions are what really wreak havoc in endo patients - mainly because endo typically implants somewhere on the intestines. Adhesions on intestines cause patial or full bowel obstruction.

Check your pathology report to see if only your uterus was sent to the lab. Your doctor may not have sent any suspected endometrial tissue to be examined. The other report you need to get is the operative report from your surgeon. That would be the best document to look at if you're looking for proof that you had endometriosis and adhesions, and exactly where it was located.

(Can't write any longer just now - husband won't shut up!)
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plsnomore
New Member
Joined : Apr 2008
Posts : 2
Posted 4/8/2008 7:51 PM (GMT -7)
Hey I have one of those too! Husbands that don't shut up? Have any ideas on that???

Watch I get 1000 replies tomorrow in my inbox! LOL

Thanks so much let me know if you can think of anything else. I see the neurthogist shoot spelling this Thursday..

I had IBS so the Gastro doctor called it. I was seeing him for two months and just quick when the pain started coming back really bad. I felt like I was getting no where with him...So I called my OBGYN and he said it was time to see the neurthgolist so here I am, back on codeine heavy duty ones the pain gets so bad at times but then goes away....It has to do with some nerves it has too...I just don't get it!!!

I was reading up on this scitia nerve and endo...Although rare it sounds so much like what I've been going through....But that extreme scitia nerve pain on the right side before surgery is gone and not back, but feels like the same pain on the left side now? Strange I know, had enough of those looks from doctors last year....

:0 Hugs and thanks so much for replying!!! :-)
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