Twiggy you really have had a rough go of things, I sure hope another med can be given, I am sure there are so many out there. Perhaps they can give you a lower dose of the medication too. My rheumy was not so good. His eyes nearly crossed when I handed him the list of my medication. Many of these are on a PRN basis only, such as my muscle relaxer, pain pill for BT pain, and such. I list these meds because I do take them from time to time. But I have pulmonary problems and take numerous meds for it, on oxygen now 24/7, crohns disease meds, UC medication, high BP, pain pump implant. I really became offended when he said you already take a ton of medication and I sure don't want to add to the mix. I looked him right in the eye and said, I am not here for medication, my dr sent me here because she thinks I have now developed Lupus and she needs for you to either confirm the dx or not. Well, he did give me the dx for it. When I need to see a rheumy again it will be with a new rheumy. My dr felt really bad because he said that to me. Keep us posted. Susie