Oh you poor dear. I've had the bad luck to have this happen to me although not on a regular basis and it is horrible. I had to move constantly which just happened to be at night usually after I had taken bedtime meds so I was a bit dopey and had to keep moving continuesly, I hit a lot of walls I kicked and screamed did my meditive excercises and nothing worked. Thank god it doiesn't happen often but my Man, the wonderfull guy that he is suffers profoundly with this syndrom and sees a pain dr once a month for meds that don't work well for him. His is bad it doesn't stay in his legs but jumps all over his body making him have tremors and the shakes hour on end. He just began Mirapex a week ago and is still waiting for results. It is so hard to watch someone with this affliction that you love expecially. Their distress is so obvious and so painfull to them. I hope you find something to help you, there are quite a few new drugs out there for this terrible condition.
Of course it is worse for you what with your CP issues, this I know. Hang in there LassieLuv and we will all keep you in our prayers or thoughts, whichever applies.
I'm out, Toritoo
My mom also suffers with RLS but seems to have it undercontrol for the most part, as long as she doesn't miss a dose. If she does it comes right back and her legs start going a mile a minute. It hurts so bad to see anyone like this but your Mom? your Man? makes it even harder.