I hope that you find my other post and I am so glad to here from yourself and others again regarding LPHS. I do not know if it is yourself or another who post here that has LPHS and Lupus also. If it is not yourself I hope that whoever it is will join back in our posts regarding this painful disease. I must say again I am so happy to hear that holistic meds have been able to help you feel better and reduce your pain meds. However, I have to ask the question of you if lowering your continuous medication has been beneficial for you? I have found through many years of trials that this is one thing that I can not do. I have found that the trick to staying out of pain, which is actually is just being able to survive a day through, is keeping a good continuous medication going. Thus, having the pain pump and the fentynal patches.
I am hoping that you can post back and see if their is a way to band together to and discuss LPHS!
Yes I would like to have a chat with everyone that has LHS as we are few in numbers and anyone thinking that this is what they have ,any info helps, I still take 100 mgs of Fentanyl and the Percocet for BT pain, I am finding that most days are tollerable, I am very worried about being on the fentanyl, scares the crap out of me, they were just recalled again in Feb, as I am sure you know, some days I am still in bed not able too move and that is when I take the back up of hydromorphine, and I am unable to work, just got approved through the canada pension plan for disabilty first time applying, thank god!!!but honestly since I have started the homeopathic meds I have been doing alot better, instead of sleeping 20hrs a day, and not being able too do anything or go anywhere, I am slowly regaining some independence and able to go to the grocery store by myself...lol..I look forward to hearing from you and hope this message finds you well...