no one really understands

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Veteran Member

Date Joined Feb 2007
Total Posts : 734
   Posted 4/24/2008 11:50 PM (GMT -6)   
You know, I finally came to the understanding that no one really understands. I have two neighbors, one is like oh you just have Crohn's it's likey UC which is no big deal? The other one more understanding checked on me on my last bought, I was in horrible pain. She realizes what it's like. Relatives are the same, they either get it or they don't. You can't change people, just take care of yourself, worry about yourself and the rest will happen.

Regular Member

Date Joined Feb 2005
Total Posts : 369
   Posted 4/25/2008 6:43 PM (GMT -6)   
I have UC, and find that most people, including friends and family do not understand it at all!!! i am constantly told that if i just ate better or stressed less, i would be CURED! I constantly hear that someone KNOWS someone who "HAD" UC and that they cured it by -----(fill in the blank, i've heard it all).

My husband gets it because he sees me running to the bathroom upwards of 15-20x a day when i flare. He has seen me pass out and fall off the toilet, he has seen me hospitalized atleast 10 times since my dx 4yrs ago. He has seen my pain, vomiting, ect...

so, i can tell u that I understand your pain! im here if u need to chat! shannon

Regular Member

Date Joined Jul 2006
Total Posts : 495
   Posted 4/25/2008 7:54 PM (GMT -6)   
Crohn'snme - I have to agree. Everyone out there likes to tell you how to fix things, without ever having suffered it themselves. Many do so thinking they are doing you some good. Most couldn't put up with what many of us deal with every day - for even one day.

My younger brother hurt his ankle while I was home, he sprained it pretty good, I still remember the time he looked at me, dead on, after two days of bad ankle pain and asked " you hurt like this every day?" my response was quite simple - "no, I hurt worse".

The best thing I've found is that I wouldn't wish this pain on even my worst enemy, I can't expect those around me to understand the pain and suffering of each day. I have to accept that people just don't "get it", unless they've been there. My husband shocked one of our friends when he described a good day as a day that I could "walk and get around okay". To some people it just can't sink in it's a struggle every day.

I wish you the best!
"When we come to the edge of the light we know, and are about to step off into the darkness of the unknown, of one thing we can be sure; either God will provide something solid to stand on... or we will be taught to fly.'"

"Cause when push comes to shove You taste what you're made of, You might bend, till you break Cause its all you can take; On your knees you look up Decide you've had enough, You get mad you get strong Wipe your hands shake it off, Then you Stand" From "Stand" by Rascal Flatts
Dx.: Polycystic Ovarian Syndrome, Ulcerlative Colitis, Chronic Inflammation of the Colon, Ruptured & Fused L4-L5-S1 w/pinched nerves, Degenerative Disc Disease, Chronic Costochondritis, Back Muscle Spasms, Asthma, Benign Tremmors (hands)

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