It is so tiring and frustrating to be at the point you are. I know as I am too. I also have Crohn's(27 years) and CP and am really struggling right now. My GI says I have IBS in addition to the Crohn's and has pretty much given up on me. I don't believe I have IBS. So I am seeing a new GI next week. I have seen 4 different PM doctors in the last 7 years and they don't seem to know what to do with me either. It's seems to be a constant battle to get them to figure out what is wrong as opposed to just treating the symptoms.
But what else can we do. I still want a quality of life and will keep fighting to get it. I hope you can do the same by continuing to seek out other doctors who will do what they are suppose to do and help us. Good luck and keep fighting the fight!