trigeminal neuralgia...

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Veteran Member

Date Joined Mar 2006
Total Posts : 565
   Posted 5/16/2008 9:19 AM (GMT -6)   
I'm 28/male... and last friday night it started...i was eating a sandwhich and bit down and felt some soreness in my tooth and thought it was just a tooth thing because that tooth is sometimes sore.... didnt think anything of it... and shortly after the pain spread throughout my left side of teeth. and shortly after developed into a bad headache... that whole night i was in AGONY and wanted to die ... the next morning i woke up, no pain... went to my dr and he thought it was a migraine... an hour later i'm still ok, and started to snack at home and AGAIN it began and quickly had to go to the hospital... they do a cat scan and nothing shows up, and the dr. tells me i have neuralgia. I get prescribed gabapentin (generic) 300 mg and the pain subsides and yesterday was my 1st day oxycodone free day and this morning I get a pain so swift and acute i need the oxycodone again....

I REALLY need someone who is going through this also... I'm scared to death that I will have this my whole life.

*The only thing I can think of , last friday when it started , I was standing out in a light rain for an hour. that wouldnt cause it right?
**I swear its a tooth/gum thing but when i rub my tongue over the tooth/gum, theres no pain, so I'm assuming its neuralgia.

Regular Member

Date Joined Feb 2008
Total Posts : 233
   Posted 5/16/2008 12:35 PM (GMT -6)   

Hello billo,

I am so sorry that you are having to deal with this excruciating condition at your young age.  I am 55 and was diagnosed with trigeminal neuralgia about a month ago.  I have dealt with a lot of pain since I was 4 yrs. old, but this was something else as you know.  I couldn't eat anything solid for almost 4 weeks.  Then to top it off I had a bone fragment break off and poke out through my gums and was slicing the side of my tongue.  I guess when it rains it pours.

I am sorry to be the bearer of bad news, but I believe that this is a condition that will stay with you from now on.  The good news is that it may be a long while before you have another attack.  When you do, take your pain meds on a regular schedule until it clears up completely.  Pain meds usually tend to have to build up  in you system to work properly, so just taking them now and then really doesn't do much good.  Eat things that are soft ( and boring), like jello, toast dunked in your favorite warm beverage, well cooked pasta, you get the idea.  I also found that appling one of those frozen gel packs to the are really helped a lot.  Stay quiet, don't talk too much and don't hang around with anyone funny, because it hurts to smile. :-)

Standing in the rain didn't cause your pain.  That nerve gets irritated and bingo, pain.  Maybe you were clenching or grinding your teeth, maybe you ate something that was hard to chew.  I find mine acts up when I am stressed out and tensing up my muscles.

Hope it helps to know that you are not alone.  Keep a good thought and if you ever want someone to talk to who knows what you are going thru, I'm usually here every couple of days at least.

Gentle hugs,
Fibro, Osteoporosis, OA, RA, DDD, IBS, Vertigo, Tinnitus, Carpel Tunnel, Epilepsy, TMJ,  Hypothyroidism, Familial Tremors, Spasms, Neuropathy, Trigeminal neuralgia, heel spurs

Forum Moderator

Date Joined Apr 2005
Total Posts : 17822
   Posted 5/16/2008 3:59 PM (GMT -6)   
Hi, Billo!  Type "trigeminal neuralgia" in the Google custom search box right below the yellow bar and you will see all that has been on HealingWell about this painful condition.  I know it was discussed in the fibromyalgia forum not too long ago.  At least you will see what others were doing for it and know you are not alone.  I hope this helps. 
Forum Moderator/ Fibromyalgia
Fibromyalgia, Crohn's Disease, Ostomy, Diabetes, Autoimmune Inner Ear Disease, Osteoporosis
God does not give us a spirit of fear, but of power and of love and of a sound mind.    2 Timothy 1:7

Veteran Member

Date Joined Mar 2006
Total Posts : 565
   Posted 5/19/2008 12:47 PM (GMT -6)   
thank you guys... last night i was drinking a soda and all seemed fine... then w/o warning , a few hours later my teeth got VERY sensitive... wasnt sure if it was the neuralgia or ACTUALLY my tooth. :(

i'm definitely out of the woods, but still get headaches throughout the day , well actually they feel more like pressure building up in my head and than goes away quickly
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