I'm so sorry to learn of the seriousness of your condition. Your courage in wanting to live your ife to the fullest is an example for us all, as we all are terminal, ultimately.
Do you have something equivalent to hospice in Belgium? The hospice philosophy, which I believe was created in Holland or England (not quite sure) is all about
making someone as comfortable as possible, but losing as little functioning as possible. Are your doctors skilled in the best kind of pain management, to help titrate various medication levels, get creative, etc. to help you stay alert
and mentally sharp for as long as possible? I think hospice physicians are. You may need very close monitoring with meds to make small changes, depending on your medical condition.
It might also help to look at your work and ask yourself what aspects could you continue doing even if you lose some sharpness, intellectual capacity? For many of us who have stopped working, the lack of mental clarity and lack of stamina play significant roles. At some point you will likely have to cut back, and possibly stop, but if you know some parts of the job you could keep doing, that might help you stay functional up until the end, or as close as possible.
It's none of my business, but is there also room in all this for family and/or friends?
I don't know if this helps, but hopefully others will add.
Post Edited (PAlady) : 5/19/2008 7:55:29 PM (GMT-6)