I'm sorry to hear that you're going through all this.
I wish I could help in some way and provide answers
I myself am going through similar issues with PN and other pain issues. I am now starting to think that I may indeed have Lyme although a few years back I under went a glucose tolerance test and I didn't do very well with it. (Most people actually fail this test) So one of my NP that I was seeing said I had DM.
Of course that was quickly ruled out but my other doctors but the symptoms that lead to the GTT disappeared after I lost weight and started to exercise. Now however these same symptoms are back and it would not surprise me if I was after Diabetic. Now if I only could convince my PCP of this.
At any rate I don't blame you for being off of big hospitals. I made my mind up after my Lahey Clinc fiasco that I was done with hospitals and will not see anymore specialists other than the ones I have been seeing currently.
Whatever you decide to do I wish you well and hopefully you can find someone out there that's capable of finding what's wrong.
Post Edited (quahog) : 5/26/2008 9:17:34 PM (GMT-6)