Linmoy, I know they've had some luck using botox in children with CP to ease severe spasms. I'd suggest if he hasn't, that he try to get in to see a neuro who's familiar with treating people with CP. If a way could be found to break up the rigidity, that would ease the spasms and decrease the need for the pain med.
As far as weaning off, I would definitely suggest that be done under medical supervision.
Moderate to severe left-sided UC (21 cm) diagnosed 2001.
Asacol, Rowasa, Pentasa, Prednisone, Entocort, Azathioprine
Avascular necrosis in both shoulders is my "forever" gift from steroid therapy.
Colazal, Remicade, Nature's Way Primadophilus Reuteri. In remission since April, 2006.
Co-Moderator UC Forum
Please remember to consult your health care provider when making health-related decisions.