Linmoy, I know they've had some luck using botox in children with CP to ease severe spasms. I'd suggest if he hasn't, that he try to get in to see a neuro who's familiar with treating people with CP. If a way could be found to break up the rigidity, that would ease the spasms and decrease the need for the pain med.
As far as weaning off, I would definitely suggest that be done under medical supervision.
Judy
Moderate to severe left-sided UC (21 cm) diagnosed 2001.
Asacol, Rowasa, Pentasa, Prednisone, Entocort, Azathioprine
Avascular necrosis in both shoulders is my "forever" gift from steroid therapy.
Colazal, Remicade, Nature's Way Primadophilus Reuteri. In remission since April, 2006.
Co-Moderator UC ForumPlease remember to consult your health care provider when making health-related decisions.
Chutz
Forum Moderator
Joined : Jan 2005
Posts : 9477
Posted 5/25/2008 2:27 PM (GMT -7)
Hi linmony,
And welcome to the forum! I'm so sorry your brother is in such pain. It breaks my heart. One thing please understand...he is NOT addicted to the percs....but his body is dependent on them. Huge difference. Addiction means you are abusing the drugs and they are harming you, you steal them, you take way more than prescribed and will do anything to get more. I don't see that your brother is doing this from what you have said.
But, his body is totally dependent on them and yes, he will suffer withdrawal if he stops cold turkey. Plus it's very dangerous on him to quit without a doctor's help. Literally he could die going cold turkey. There are drugs, like Suboxone, that they can give him to avoid the withdrawal symptoms while lowering the dosage. It's not hopeless, you just need information and to get your doctor involved.
Please keep us posted and let us know how your brother is doing. Invite him to join us if he's able.
Hugs,
Chutzie
Co-Mod Fibromyalgia & Chronic Pain Forums
~~~
Fibromyalgia, Ulcerative Colitis, Insulin dependent diabetic, collapsed disk, dermatitis herpetiformus, osteo arthritis in spine and other locations.
***************
The only difference between genius and stupidity is that genius has it's limits. Albert Einstein: (1879-1955)
Muzz
Regular Member
Joined : Mar 2008
Posts : 395
Posted 5/25/2008 6:51 PM (GMT -7)
Hi linmoy and Welcome! I don't have any advice that way but just wanted to welcome u and to tell u hello.
If pain could have cured us
we should long ago have been saved.
PAlady
Veteran Member
Joined : Nov 2007
Posts : 6795
Posted 5/25/2008 8:43 PM (GMT -7)
Hi, Linmoy,
I also don't have any specific advice, other than what you've already been given, but wanted to welcome you to our forum.
I hope you can find some help here, but I know you'll find support.
PaLady
sjkly
Veteran Member
Joined : Dec 2007
Posts : 2113
Posted 5/26/2008 12:29 PM (GMT -7)
Does he have a baclifin pump to ease the spasms. Spasms can be exteemly painful and without something to relieve the spasms he will be afraid of the pain. Take care of the spasms first then think about reducing the pain meds-that would be my approach. Obviously he needs a doctor who is knowledgeable and willing to listen and help.
Sj
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