OMG the horror

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Regular Member

Date Joined Jan 2007
Total Posts : 113
   Posted 6/1/2008 7:47 AM (GMT -6)   
Hi all, I really need to post right now and talk about this.  Last night I really thought I was in hell.  The pain in my face was soooo horrendous I couldnt sleep and I was shaking with anxiety.  I really really realy just wanted to end it all.  How can anyone even survive with so much pain and nasea?  I took a pill and put vicks on my face to soothe the pain.  I cant believe this, its like one big nightmare.  Im so sick of doctors not believing me, telling me its all in my head, and saying im too young to have this problem.  Im 26 years old, there are people 5 years old who have cancer, what about that??  I even went to Shands clinic and they said the same must be in your head.  I have lost 15 pounds in that past month because I cant eat much at all.  I asked them what about a feeding tube or an IV, they said no because that wouldnt help your problem.  I was like, so what am I supposed to do, suffer in this horrible agony everytime I eat, sleep, talk, ect?  I told them "I CANT TAKE THIS PAIN ANYMORE, ITS NOT PAIN ITS TORTURE< AND IT NEVER LEAVES ME!!!!!!!!"   and all they said was "well, just take your depression meds"  Im so sick of this.  What should I do?  I look in the back of my throat and I can see where its all red, inflamed, and ***** looking from the bile and the acid.  It hasnt healed in 1 year and has been getting worse.  Should I go to another doctor?  I already went to the er, they just sent me home and told me to take some vicodin.  There must be somewhere I can go for help, I cannot take this suffering anymore.  What do i do???

Elite Member

Date Joined Jan 2005
Total Posts : 24909
   Posted 6/1/2008 8:13 AM (GMT -6)   
If it were I .......
I would be finding another Doc that will really listen to you and give you the total once over completely ........

I also have fallen thru the cracks of HC system but I was lucky and blessed to find a Family Doc that is really the greatest advocate for me .......other than have to be your best advocate IMHO...
PUSH the doc's til they listen and do not let them get away with TX you this way
I was at 82 lbs and was tube fed I will never go that route again so I do eat now alot of small meals daily and for the sores in back of throat and mouth ( crohns ) I use Nystatin and it does help me but you must first find a doc that will really listen to you IMHO

Just my opinion folks.........

  DX With Crohns,Pyoderma Gangrenosum,Anxiety/Panic,Fibro & Other DD
Moderator @ Anxiety Panic..Alzheimer's..Co mod @ Crohns
                               FIGHT the FIGHT with all YOU HAVE

Forum Moderator

Date Joined Jan 2005
Total Posts : 9157
   Posted 6/1/2008 10:02 AM (GMT -6)   
Hi Gabbs,

I agree with Lyn...get yourself a new doc and make sure to interview him/her before signing on. Try one of the university/teaching hospitals in your area. I see you're from Florida. Not sure which part of the state you're in but here's one link to the University of Florida medical center. Hope this helps...

Co-Mod Fibromyalgia & Chronic Pain Forums
Fibromyalgia, Ulcerative Colitis, Insulin dependent diabetic, collapsed disk, dermatitis herpetiformus, osteo arthritis in spine and other locations.

The only difference between genius and stupidity is that genius has it's limits. Albert Einstein: (1879-1955)

Regular Member

Date Joined Feb 2008
Total Posts : 23
   Posted 6/1/2008 10:51 AM (GMT -6)   
I too have gone through similar problems. I first started having very horrendous knee pain when I was 23(now I'm 25) and at first the docs told me that I was too young to have knee problems. It initially took me 6months to get correctly diagnosed. But now two years into the battle I have found great help and comfort from a Pain Management doc, support groups, and generally informing myself. I know that it's really hard when no one believes what you are going through but try to keep your chin up. Remember there is someone out there that can help. I hope you have a lpd.
CRPS 1 in the right leg
Spinal Arthritis
Anxiety Disorder

One day at a time

Regular Member

Date Joined Jan 2007
Total Posts : 113
   Posted 6/1/2008 11:30 AM (GMT -6)   

Hi, Ive been to USF and UF teaching hospitals.  Both did not understand my affliction and told me to take depression meds.  Now where do I go?  Im supposed to take 2 aciphex a day but my insurance wont cover that, so I dont know what to do.  I bought some over the counter prilosec instead cause that was all I can afford.  Does anyne know of a really good throat and swallowing clinic I can go too?  Im looking for one and I dont want to give up until I get well


             ~Waiting for a miracle healing~
- Gastroparesis, esophageal dismotility, gastritis, GERD, bile reflux, Gallbladder disease, esophagitis, Chronic pain in face and throat, Difficulty swallowing, painful swallowing, anxiety and depression, carpral tunnel syndrome. ~
             ~ Anorexia, Addiction Survivor~
By the Stripes of Jesus Christ, I am healed.  Isa 53

Veteran Member

Date Joined Nov 2007
Total Posts : 6795
   Posted 6/1/2008 1:51 PM (GMT -6)   
This is really ticking me off that you're being told it's all depression. These are NOT symptoms of depression. Ask your docs to look up the symptoms in the DMS IV (well, maybe that's not a good idea, but you can look them up under the National Institutie of Mental Health website, print them out and bring them with you next time). I say this as a mental health professional and I get beyond annoyed when docs who are lazy and/or ill-informed try to diagnose symptoms such as yours as depression. For one thing, there is no such thing as "all in your head". The mind and body are connected and not separate; Candice Pert, a researcher with the National Institute of Health actually calls it the 'bodymind" to indicate the lack of separation. So can chronic pain cause depression? Yes, and there's not only psychological but physiological explanations for this.

I'm sorry to rant a bit but you may be depressed and anxious but those are not the cause of the pain symptoms you're reporting. I don't know much about them, but possibly research the internet for docs in your region who specialize in treating those symptoms. Are they related to an Eating Disorder, or some other diagnosis you know of? If so, that's where I'd start - finding a specialist in that area. You most definitey need to find another doc!!


Regular Member

Date Joined Feb 2005
Total Posts : 369
   Posted 6/1/2008 5:59 PM (GMT -6)   
Have you been to a good ENT and a good GI doc yet? These are the two doctors you should see right away! Tho, i am not understanding where ur pain is it the face? or is it the throat/mouth???

Anyways, if u have acid reflux, u should see a GI and a good ENT can check ur throat/glands/tonsils.....My tonsils were so infected as i grew up and in my 20's they would swell so bad that my throat would close, and i could not even swallow my own spit. My ENT removed them and said they were the most infected tonsils he had ever seen.

I hope that you can find some relief soon.Hang in there! Everyone here is great! hugs, shannon
2003, dx moderate UC
2000, dx selective IGA deficiency w/ anti IGA antibodies
2000, dx Antipholipid Antibody Syndrome
1999-current, chronic hemmoragic ovarian cysts, w/ partial ovary removal
1977, complete reconstruction of foot after lawnmower accident (chronic pain)
6mp 75mg, prednisone 40mg (just starting meds again)
percocet 5mg 3x day
potassium 3x day

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