Posted 6/23/2008 10:50 AM (GMT -7)
To answer your question, I take percocet 10/650mg every four hours for the pain. It was just taking the edge off. Then I decided to go back on lyrica. I am taking 25mg three times a day and it is working beautifully for me. I am actually out of pain for the first time in one year. But you have to remember that I have fibromyalgia and lyrica is recommended for that condition.

I hope that helps.

Gentle Hugs,

Lindaloo
Moderator Chronic Pain
 
Believe in yourself.  Be kind to fellow humans and animals.  Take time to smell the flowers and the coffee.
And by all means, when you are down, ask me for help.  I will be there.
 
Linda

Posted 6/23/2008 11:06 AM (GMT -7)
I am a big advocate of changing doctors if your current one is not working for you. Two times a weeks...yuck! and they should return your calls. However, I also can see the whole "drug-seeking" fear, although it is ridiculous.

My dear MIL fell and broke her hip last week and when we were in the ER she needed pain meds and I swear they acted like she was an addict when they were doling out the pain meds. She is 82! I thought I had read or heard somewhere that there is a new movement toward doctors being more aggressive towards relieving people's pain appropriately and worrying less about addiction, becuase if you are a pain specialist you should be able to do things properly. Maybe I fantasized that!

When I had lower back pain and sciatica a few years ago, they did some kind of thing where they went in and put some pain meds in my spine...like an epidural. I can't remember what it was called. But it worked like a charm. I've been pain free since. I was lucky, I know.

Best wishes to you. I am so sorry you are hurting. :)
Posted 6/23/2008 4:33 PM (GMT -7)
marthamae said...
I am a big advocate of changing doctors if your current one is not working for you. Two times a weeks...yuck! and they should return your calls. However, I also can see the whole "drug-seeking" fear, although it is ridiculous.

My dear MIL fell and broke her hip last week and when we were in the ER she needed pain meds and I swear they acted like she was an addict when they were doling out the pain meds. She is 82! I thought I had read or heard somewhere that there is a new movement toward doctors being more aggressive towards relieving people's pain appropriately and worrying less about addiction, becuase if you are a pain specialist you should be able to do things properly. Maybe I fantasized that!

When I had lower back pain and sciatica a few years ago, they did some kind of thing where they went in and put some pain meds in my spine...like an epidural. I can't remember what it was called. But it worked like a charm. I've been pain free since. I was lucky, I know.

Best wishes to you. I am so sorry you are hurting. :)
Wow, the epidural took away the pain for good, I would say that is a wonderful blessing, good for you!
The thing with changing docs, and I keep waying out the pros and cons is honestly, I don't know what to do, lol. I truely hate pain meds but I took what he prescribed and it did get me out of the pain. I just feel so limited in the choosing of doctors around here. There are only so many and they are all in groups. Personally I have a feeling many aren't good. Not to return calls is outrageous, I agree. I wish you remembered what they did to your spine. Now I have to tell them I need a neuro for an EMG--something they should have done. In the past, I would be the one making the calls to see if they did accept my insurance, etc., they can't even be trusted to do this right. Oh guess what, his assistant just called, a weekend later. Thanks for your input and kind wishes. I sincerely appreciate it.  

Swallow your pride, you will not die, it's not poison.- Bob Dylan 

Posted 6/23/2008 4:37 PM (GMT -7)
Lindaloo said...
To answer your question, I take percocet 10/650mg every four hours for the pain. It was just taking the edge off. Then I decided to go back on lyrica. I am taking 25mg three times a day and it is working beautifully for me. I am actually out of pain for the first time in one year. But you have to remember that I have fibromyalgia and lyrica is recommended for that condition.

I hope that helps.

Gentle Hugs,

Lindaloo

Hi Lindaloo, that is wonderful that the lyrica is really working for you. My husband was told he has fibro but our insurance doesn't cover it. May I ask you, did you have bad side effects or gain weight?
Swallow your pride, you will not die, it's not poison.- Bob Dylan 

Posted 6/24/2008 3:23 AM (GMT -7)
Please dont think I was even thinking you were drug seeking! I just have worked with these fine folks for so many years and then have had to deal with them on a pain issues for 10 more of those years and the things I saw and heard from some of them behind patients backs about their "drug seeking behavior" was well jsut rude and totally uncalled for in most instances.

It is horrible that we have to fear retribution from the law as well as the Doctors to get what they took an oath to give. They swore to try if humanly possible to alleviate human suffering for Gods sake. What more do they want from us as many of suffer silently for so long and far too many of us dont seek the help we need and deserve until we are at the point of ending the pain even if it means ending our lives! How could anyone NOT take that seriously?

You also deserve to know whats causing that much pain but getting any of them to help you find answers is like pulling teeth and I dont know if it is caused by the over booking of patients as many of the Docs that do treat pain have a load that is heavy to bear as word of mouth gets him many many referrals and requests for new appointments.

I know I see here over and over the folks who talk about their Docs being so busy and dont call back and having to wait for hours to be seen and months to get an appointment and if this is the case then you can bet this Doc is trying to help as many folks as he can but sadly it makes it difficult for those patients that cant get thru to him or cant get an appointment fast if need be.

I dont know if this is the situation with your Doc or not or if he is just one of those that is slack at his job as those are in any business and if this is the case I would definately be on the look out for a better one.

It matters also about the insurance coverage or lack of it that you have as this is always going to be a thorn in the side and many Docs are encourage NOT to use expensive testing until all alternative resources have been exhausted. Sad but oh so true. If you have state aid especially your going to have Docs who might not be agressively using the tests offered for a accurate diagnosis as he is thining about the cost tot he tax payers when they should be remembering that most us were a tax payer for many a year and never used any resources we paid into until now.

There could be many cuases as to why he is doing what he is doing but in the end none of them matters as you want answers and you deserve answers so I would get them if I were you.

I am not sure if you said what kind of Doc he is whether he is a specialist or a PCP but if he is your PCP you might find yourself needing a referral from him to see a specialist and this might prove to be difficult at best.

Almost all of the specialists like pain management require a referral from your treating Doc as well as a copy of your medical records. I know my Neuro and ortho both required referrals so that might also be a tight one to get if he thinks he is doing a good job and your looking for more meds versus answers. If there is a way to make this visiting another Doc his idea I would try to wean it out of him.
NVR
 
Bilateral knee replacements,spondylosis of L-3,4,5 and S-1, osteoarthritis,premenopausal migraines.
 
Meds: Methadone,xanax,zanaflex,maxide,prempro,K+,indocin,lexapro,neurontin(coming off) lyrica(going onto)
 
 

Posted 6/25/2008 1:49 PM (GMT -7)

Oh no, I never thought that you thought I was drug seeking. I am trying to remain calm. But it also happens to be that my husband is in horrific pain himself. The doctor I have been referring to is our PCP. He told my husband it seems like he has fibro. Of course I know, he should have an expert declare it. I could not believe how much pain he was in this morning. This doctor is stingy giving out meds "reminding" us that pills are addicting--no kidding. Like we like this!! We were perfectly healthy till we moved to Arizona. Sometimes we think it's the extra dry climate. It is just very odd that the both of us are so messed up and are given a hard time when asking for meds just to relieve the pain. If this doctor to could feel our pain, do you think he would care about being addicted or getting out of the pain?? I am just so frustrated. Then to top it off, I mentioned I once again had to ask for a referral for an EMG. I believe I mentioned how I am diagnosing more than him, (which I would bet many have ran into to ). Not one of the doctors I saw in 3 years told me about it, I found out through my brother---so he writes me a referral, the girl at the office said she'll take care of everything and if I don't hear from the other doctor to call myself. Turns out, she never did a thing! And to boot, the doctor doesn't even accept my insurance. When I spoke to my doctor's office they told me that I had to find a doctor to do the EMG. And I'm thinking, so what exactly is THEIR job? What a mess. It's bad enough being in pain, but for these people to make everything harder for you is terrible.

The doctor's assistant that I called 2xs on Friday, called me back on Monday 4:45--of course, when I called back she didn't answer. My husband hopefully will see this doctor tomorrow--I am not going, the tension makes my pain worse, and hopefully will talk to him and let him know about everything. I think we both need an extended release but also a quick acting pill. We don't want to have to take any of these, but without them, we can not function. Why this is so hard to understand I don't know. Our last doctor would have given us anything. I turned down many drugs but boy do I wish he was still here, instead of wrestling for pain pills.

Sorry for going on, I am just so disgusted. My poor husband went from daily horrific panic attacks to fibro or whatever it is causing terrible pain and I have been in pain almost 3 years that just varies in it's level of pain. Thanks for listening and thank you everyone for your support.  

  

Posted 6/26/2008 12:08 PM (GMT -7)
I am getting so mad each time I hear about your doctor and his pious opinions on pain medication. Yes, they can be addicting. What happened to relieving suffering that he was supposed to learn about in medical school?? I personally think you need a pain management doctor for your condition. There is no reason why you can't be on a extended release type medication (if that's what works for you) and another medication for breakthrough pain. My doctor did that with me when I was trying the Morphine and the Oxycontin. They really didn't work that well for me so I went back to my percocet after about two months of trying other things, and don't you know the percocet started working again. Unfortunately, it was not long until it only took the edge off the pain and I thought to try the lyrica again.

To answer your question, I had headaches from the lyrica for the first five days I was on it, but they abated after that. No weight gain or change in appetite so far. I was on it before for a year and I didn't notice any weight gain then from the lyrica either.

Anyway, I think you are being treated like a second class citizen with this doctor and you need to get away from him. I don't like to hear about you suffering and not getting proper treatment because of your doctor's personal biases. That's no good.

I look forward to hearing from you soon that you have gotten relief and that life is better.

My warmest hugs to you. I will pray for you and success in your efforts to relieve your pain, Denim.

Lindaloo
Moderator Chronic Pain
 
Believe in yourself.  Be kind to fellow humans and animals.  Take time to smell the flowers and the coffee.
And by all means, when you are down, ask me for help.  I will be there.
 
Linda

Posted 6/27/2008 3:03 PM (GMT -7)

Lindaloo, thank you so much for your concern. It is comforting to have someone understand. I am still in pain, even after taking this extended release and a few ultram. I am trying to get a hold of a doctor for an EMG--is that the norm? that I, the patient should be calling?? seriously, why have a referral dept.? No one picked up the phone at this other office for the EMG--which isn't a good sign and so far no call back and it wasn't even after hours. I am so disgusted and disheartened. My husband did go yesterday and all of a sudden this doctor thinks it's something else with him. With me he has NO ideas!! I was hoping to see a different neuro for hopefully not just the EMG but ideas. I can't accept that there is no answer to what I have and have to worry about, do I even have enough pain meds left, etc--all that goes with this. I truely appreciate your concern, I think I need a break through pill also, not just the ultram and something that works. There really isn't a great choice of doctors here, if I knew of someone I would go. I know I can take a chance but all of this should not be so hard. When I hear people speak of doctors that flat out won't give pain pills I really can't believe it. How can they do that??? I never heard of such a thing. That is part of why I'm not running out this guy's door yet--I am afraid of getting nothing. He has been good with giving referrals if I ask. It does blow my mind that he didn't even know that the doctor he referred me to wasn't with my insurance and he couldn't recommend any neurologist. It makes me think, what type of people is he seeing? not one needs to a neurologist?? So weird. I'll be in touch. Thanks again for your care. God bless you!!   


Swallow your pride, you will not die, it's not poison.- Bob Dylan 

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