It's been awhile since I last posted, so I guess it's time for an update.
I was switched over to the Fentanyl patch , which is working pretty well as my base pain med. I am still taking 5-10 mg of oxycodone for breakthrough pain though. At least it seems to be better relief than I was getting after being on the Oxycontin for so long.
The doctor added Cymbalta, at first once a day at bedtime, and now twice a day. I am taking 60 mg of it but I don't seem to notice much of a reduction in the neuro pain. I still take the Lyrica at 600 mg a day.
The baclofen though is still not giving me as much relief as it once did for the spasms. They still hit often and really hard. They buckle my knees when they do hit and I have to make sure that if I am standing, I am near something that I can grab onto in order not to fall.
I am using my manual wheelchair more, since I can't tell when the spasms are going to hit, or where, so if I am out of my house, it's safer to use the chair.
I am still trying to figure out the funding issues for the ramp that I need to get my motorized wheelchair in and out of my house. It's frustrating to have a 38,000.00 chair that is supposed to make my life easier, sitting in my livingroom because I don't have a way to fund building a ramp.
I talked to our insurance company because I found a modular ramp, one that can be taken apart if necessary and moved to another home if we were ever to sell ours. It should be covered under durable medical equipment but my insurance says no. That makes no sense to me, to pay for the chairs, but not pay for a modular aluminum ramp that can be moved if necessary. I can see why they would not want to pay for a wooden ramp, but it really makes no sense to me, why they would not pay for the modular one????
Anyway, I have my moments with adjusting to the idea of loosing my ability to walk as I once did, but overall I am doing okay with it.
I am having some new problems though. My hands and arms go numb. In fact , my fingers are numb almost all of the time. Sometimes the numbness is worse than others, but there is always a diminished sensation in the last three fingers of my hands. It's really strange.
If I raise my arms to type on the keyboard tray , the arms also go numb, and also at night, when I lay down. I am dropping things too. In fact, yesterday, I dropped a cup of coffee because I couldn't get it in my grip.
I was sent for an MRI of my brain, which found two lesions, one in the frontal lobe white matter, and another in the parietal lobe white matter. They were looking for MS, but the MRI didn't show any lesions in the spinal cord, or the areas typically found in MS I guess. I am not sure what to think since I searched around on the internet and everything that I found in regard to lesions in those area took me right back to MS.
I am wondering if I need to see someone who specializes in MS to find out if it is or isn't? Any suggestions?
They also found a bulging disc at C 6 and 7 I think it was......and there is foraminal stenosis and some compression of the cord as well.....
I am worried about the lesions, needless to say, and now I am wondering if the lesions or the cord compression have anything to do with why my hands are numb? Frankly, it scares me, either way..... Something is going on, what it is, I'm not sure.....
So anyway, that's the update with me, I read every day, just don't post as often.
If you have any suggestions, I'd appreciate them.