Posted 7/17/2008 12:11 PM (GMT -6)
Welcome honey to our forum. I am truly sorry that you are going through so much. My sister also has cancer. Acute Lymphocyctic Leukemia to be exact. She has two boys, one with Angelman's syndrome, and another boy, who thankfully is healthy.
She was diagnosed at 40, and thankfully, we count our blessings every day that she is in remission now. For how long, we don't know, but we are greatful for each day that she is.
I can't imagine how difficult this is for you, for your new husband and for all of your children....yours, his and yours together.
As far as your pain meds go, I also don't agree with getting them from other sources other than your own doctor, but I do empathize with you in your desperation for some pain relief.
My sister's doctors, sent her to a good pain management doctor , who kept her in as little pain as possible. There is a certain level that she had to learn to deal with , but her doctors were pretty good about keeping her pain levels down.
My suggestion for you and your family would be to get you to a pain treatment center, and there are lots of them in NYC, and then work on changing your pain meds around until you get to a balance that allows you to keep your pain levels down, and lets you be involved in your children's lives as much as possible. It's not going to be perfect, by any stretch of the imagination, but there is a balance that can be struck.
There has to be a better medication program for you than norco and MS contin at this point in your disease.
I am sorry that you have found yourself in this position, and sorry for your pain.....I will send up some good thoughts for you, if they will help.
Bless you all,
PLIF/TLIF Fusion w/Instrumentation L4-5 Spondololysthesis L4-5.Laminectomies L4-5, foraminal stenosis L3-4, L4-5, L5-S1, herniations L3-4, L4-5, L5-S1, central canal stenosis L3-4, L4-5 and L5-S1
POST OP CES 3/30-06
Neurogenic Bladder and Bowel, bilateral numbness legs and feet
Revision for failed Back surgery, pseudoarthrosis L4-5, hemilaminectomies L3-4, L4-5, L5-S1, bmp added to revision fusion, replaced two bent screws that were reversing out of vertebrae - August 2, 2007
On going back pain and neuropathic pain, failed back surgery, consult for scs, decided not to do that at this point.
Adhesive Arachnoiditis also......just what I didn't need..