My daughter was recently diagnosed with Trigeminal Neuralgia after a terrifying experience. She started experiencing severe pain inside her mouth on Friday night and by Monday morning we had made two trips to the ER, seen a dentist and a ears, nose and throat specialist. The pain started in the roof of her mouth and traveled to all her teeth.
The pain was so severe, she was practically screaming in pain. They ran many tests and at last had a diagnosis for what she was experiencing. She is on pain medicine ( percocet ) and neurotin.
My question to anyone who has any knowledge on this condition is - what do we do if she feels another attack coming on? We've yet to find a proper doctor - we really don't know which way to turn. The ears, nose and throat specialist didn't seem to have much knowledge on the condition. Any advice?