Excruiating burning head pain

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New Member

Date Joined Jul 2008
Total Posts : 2
   Posted 7/28/2008 7:04 AM (GMT -6)   
Hi I am writing on behalf of my cousin who is desperate. She is a nurse aged 48 and until recently was in good health and always cheerful, never taking any time off work. A couple of months ago she began feeling numbness, strange sensations in her finger, hand and was being treated for carpal tunnel syndrome. about a month ago she was hit by a strange sensation which she described as being in the roof of her mouth, horrendous headache and a feeling of being clamped tightly around her neck. Pain has progressed down her arms and legs but the intensity is described as a constant debilitating burning head pain coupled with crushing and tightening of her skull around the brain. She is convinced that this will kill her and she is dying. MRI has not shown anything and she is being treated for anxiety with Amitripyline and Gabapentin. MS has also been mentioned and she is waiting to see a neurologist.This is completely knocking the life out of her and making her feel very low. Last night she prayed that she would not wake up. She has coped with a lot over the years; her husband is an alcoholic and was dry for 6 months until a couple of days ago..(He can't cope with the stress of her illness!!!!!!!!!!!) Her 17 year old daughter is currently suffering from depression and has needed a lot of support over the past couple of years. My cousin has always remained strong for everyone. She is still hiding the extent of her suffering to her children. Has anyone else suffered similar pains ? Any suggestions or advice?

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Date Joined Jan 2005
Total Posts : 9155
   Posted 7/28/2008 11:20 AM (GMT -6)   
Hi tash and Welcome!!

I'm so sorry your cousin is suffering so much. There is definitely something going on and if I were her I would keep pushing until she gets some answers. There is a possibility that it is linked to anxiety but I sure would find out first that nothing else is going on physically first.

First, her medical condition is no excuse for her husband to start drinking again. He needs to get some help and in turn that will help her.

Next, she needs a second or third opinion. Get her to a teaching/university hospital.

Finally, she also should have a counselor she can talk to. I'm guessing she feels very alone in her struggle. Invite her to come online here and meet the family of friends who will be happy to hold her up when she needs. No one needs to live like she is.

Good luck and keep us posted,
Co-Mod Fibromyalgia & Chronic Pain Forums
Fibromyalgia, Ulcerative Colitis, Insulin dependent diabetic, collapsed disk, dermatitis herpetiformus, osteo arthritis in spine and other locations.

The only difference between genius and stupidity is that genius has it's limits. Albert Einstein: (1879-1955)

Veteran Member

Date Joined Nov 2007
Total Posts : 6795
   Posted 7/28/2008 12:03 PM (GMT -6)   
Hi, Tash,
I also want to welcome you to our forum. I typed a longer response but had some technical difficulties posting it, so I'll just say I second everything Chutz has said.

I do hope your cousin does find a good therapist. She needs your support, but you can't be everything to her. Maybe offer to go with her. This doesn't mean her pain is psychological or anything, but she's got a lot of challenges she's facing and needs as much help as possible.

And definitely her husband's drinking is not caused by her illness - it's his choice. He stayed sober for 6 months, so he knows some of the things he has to do to get back into his sober living, but that's not your cousin's responsibility. It's his. She needs to take care of herself. And you're to be commended for helping her.

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