First, thanks to everyone who responded to my original thread. Your opinion and support were very helpful!
I went on Thursday to the pain management/neurologist, armed with a list of my issues, and a detailed 4-day diary of my pains, twitches, headaches, and sleeplessness. After waiting for 2 hours to see the doctor (who those in the waiting room were saying was the best in the area), I finally got into a room. When the doctor came in, he didn't even look at my list or diary. He seemed unconcerned about many of the things I mentioned, once I got past the headaches, twitching and neck pain. He wanted to do an EMG, and I waited another half hour for that. He did the EMG, which thankfully did not involve being stuck with needles as my husband and father had explained to me, but still hurt nonetheless. He told me after dictating at a very fast pace so I couldn't understand that I had carpal tunnel in both arms, nerve root damage in my neck (on the same side as my shoulder surgery), and possibly a slipped or damaged disc in my neck. He wanted me to have an MRI of my cervical spine, and come back in 3 weeks for an EEG and a follow up visit with him. I asked him about the leg and hip pain, and he said it was probably all related. He sent me on my way with no medication, nothing else for sleeplessness until he saw me again in 3 weeks.
I'm glad that he thinks he found the problem, very relieved. I am frustrated that he didn't want to know about everything that has been bothering me, and that he was unwilling to help me for another 3 weeks. But, whatever, let's do the tests and see what they show.
I have been having a burning pain that started in my right ankle and moved up to inside my right hip since Saturday night, and my husband keeps telling me to call the doctor, but what is he going to do? It's probably all related, from what he said....but man, it hurts a lot, and I'm feeling really crappy. Someday this will all get better, right?
Have a great day!
Asthma (diagnosed at 12)
Fibromyalgia (diagnosed 9/01)
Crohn's Disease/Colitis (diagnosed 12/02)
Diverticulitis (diagnosed 6/07)
Chronic pelvic pain/endometriosis, leading to hysterectomy (9/07)
Torn rotator cuff/labrum (repair 11/20/07)
Bladder sling (8/06), cholystectomy (2/06), tubal ligation (2/06), failed ablation (3/07)
Poisitve blood test for wheat allergy, (11/07); Positive capsule endocopy showing Celiac disease (6/30/08).
Also allergic to egg white protien.
Taking Asacol, Prednisone, Humira, NuLev, HCTZ, Lisinopril, Cymbalta, Prevacid, Zantac, Ambien, Lomotil, Soma, Plaquinil, Frova, Premarin, Questran powder/Carafate suspension, Vicodin ES, and LOTS OF VITAMINS AND SUPPLEMENTS!