PaLady: It's not that the PM wants me off the oxy before the consult. She just wants me off the oxy period. Always. Yesterday. This is the doc who thinks oxy should only be given to end of life cancer pain patients. Seriously. I agree with you - it's just stupid! I don't understand her prejudice about
these meds. It's funny actually - she started me on a new nerve pain med (anti-seizure med used off-label) and it has really seemed to help, so I told her during this appointment that I was "loving" this new med because the burning in my leg was reduced until the flare up happened. I only thought about
it later on the way home, but I realized that she was all smiles about
that and totally amenable to having me stay on this med (which has potential side effects that I personally think are scarier than the oxy). I thought about
it and just laughed because I realized if I had said exactly the same thing about
the oxy because it also really helps the pain, well then it would have been a whole different story!! Just silly, isn't it?
I hadn't actually thought about
what impact it would have on the neuro appointment. That is something to consider, though. I know my pain better than I know myself (I know you can all relate) but I suppose it would help to make my case if I'm feeling worse when I see him. It's just my self preservation instinct kicks in and doesn't want to feel that way if I can avoid it somehow. Who knows...
I sometimes don't think these doctors even know I'm in the room when they are treating me anyways!
Marmite: Welcome to the forum! JDD is Juvenile Discogenic Disorder. It is a mild version of Shaumann (sp?) Kyphosis and causes speedier and more widespread degeneration of my discs. DDD is Degenerative Disc Disease. PM is Pain Management Doc. Hope that helps.
I think what you are saying about
surgeons is very true, Marmite. My father had a pancreatic surgeon who saved his life several times over through the course of a long and scary life-threatening illness. I think he practically walks on water. Certainly all surgeons are not to be cast into the same lot. I think my fear with the neuro is that I have heard of very few successful spinal surgeries. That combined with the fact that I've been told many times that surgery on my back would be as likely to cause greater damage and pain as not causes me to tread lightly in this regard.
Thanks again for all of your support everyone! I'll have to do some more thinking about
this taper issue. For now, I'm still taking what I've been prescribed as the consult is several weeks out. I will probably have to make a decision in the next week or so.
Post Edited (ryand) : 8/7/2008 5:30:19 PM (GMT-6)