Hey, CP it's so thoughtful of you to ask about
us! I am glad to hear you are getting some good family time in. It sounds like you have a lovely bunch. I hope you get some great information from Cedars. Do let us know what they say!
I am still recovering from my last flare. My pain levels are almost back down to normal (which is still not good really, but certainly better than when I'm in a flare). I saw the PM and she wants me to stop taking the pain meds my PCP and the hospital prescribed when I went down this last time. I wasn't surprised by that, but it still really frustrates me! She has also referred me to a neurosurgeon at the university research hospital. That scares me a bit (okay - a lot!) but I am nonetheless interested to hear what he will have to say.
Thanks again for thinking of us. Enjoy your family time and stop by the beach party when you have a few minutes to spare!