I am in remission from Crohns and have changed my meds over the past 2 months. It has caused me severe and disabling joint pain. I simply cannot function without pain medication. All of my joints from my toes, feet, ankles, knees, hips, shoulders, elbows, wrists and fingers are affected! My Gas. Dr told me that he didn't think it was the withdrawal from prednisone or continued use of Imuran that was causing the problem based on the fact that he had never seen anyone with symptoms as severe as mine from either of those.
Personally, at first I thought it might be a side effect of the Imuran that I continued to take after the Prednisone. (I have been off Prednisone for 6 weeks after being on 30mg/day for 10 months.) I thought the prednisone was simply hiding the side effects of the Imuran. So with my Dr's instructions, we stopped the Imuran a week ago to see if the joint pain would stop. It has not stopped.
Now I am wondering if my joint pain is being caused by withdrawal from the Prednisone and not the Imuran.
I am 57 and was only diagnosed with Crohns 2 years ago. I want to continue working until I am 62, but I don't think I can make it if this joint pain continues. I have to take a vicodin every four hours and even then it hurts to walk or get in/out of a chair. Without a pain pill I have to stay in bed and bear the pain even then.
Has anyone else experienced anything like this? The only other drug I am taking is Asacol. But, I have been taking that since the onset of Crohns two years ago and it never seemed to give me any problems. Which most likely to be causing my joint pain, the prednisone withdrawal or the use of Imuran without the Prednisone?