I've never posted on anything like this before. I've been reading here for a long time- and have gained strength from the people you are and the things you say.
My pain started almost two years ago, 10 months after the birth of my third child. I've had every sort of test/exam/surgery to find out what is wrong with me and we still don't know. My pain started in my lower right abdomen- right where my ovary was. At first it was a small benign tumor on my ovary that was removed, then we removed the entire ovary. Then we did a scar tissue removal. Since, the pain has gradually gotten worse (though it gets extremely bad during my periods) and I can feel it through to my back and now it goes all the way down my behind (tell me that's not fun to show a doctor-)
I've had three surgeries, 2 mri's, a colonoscopy, epidural/spinal injections, 4 CT scans, countless ultrasounds, bone scan, and x rays. They still have no clue. The pain specialist I started seeing when we moved back to Washington State just had me go to their Nurse Practicioner. She gave me the pain medicine I needed, but knew nothing about
side effects and that kind of scared me. I wanted to see an actual doctor- so I switched. I don't know if that was a good decision or not. My new PM put me on baclofen, which helps, but told me that he doesn't think anyone my age should be on Oxycontin or Percocet. I've already stopped taking the percocet, and now I'm down to 20 mgs of oxycontin 2x a day. It's not even close to working and I'm really really suffering. I have three little boys (ages 5, 4 and 2) to take care of- and one has autism. I can't handle this anymore! I don't feel like I have a choice. My family practice doctor won't perscribe to me and it'll take a month or so to get into yet another doctor- and I'm afraid that the next one is going to see that I've already been to two and think that I'm a phony just looking for medicine. He says that because I don't have a diagnosis and that because it isn't cancer pain, he's unwilling to help me. He's acting like I haven't tried EVERYTHING to find out what in the heck is wrong with me. I hate that there isn't a diagnosis. I feel like I'm crazy (though I am seeing a very good psychologist who deals in pain problems and he says I'm not
) My PM hasn't spent more than five minutes TOTAL with me, how could he know what's really going on anyways?
Is anyone else here out in Western Washington? I'm on the peninsula. I really need to find someone who will help me. I've got to go-I've sat too long at the computer. It' kills me.