I just want to second PaLady's comments to you. She and I are definitely right there beside you in this battle to struggle through this monster of chronic pain and disease that has taken over our lives and now seems to even be taking away our dreams. I know exactly what you mean about
how much those off-hand comments hurt. People think they are being helpful and I really do think they mean well, but there is just no way they can understand what it is like to be in this position. I struggle sometimes even within this forum to not be envious of the people here who have "hubbies" at home to take care of them and help pay the bills and take care of the dishes and the laundry and such. And then I feel almost sick with disappointment in myself that I could begrudge anyone the blessing that I myself want so much to have.
If I let myself get to focused on it, well a vicious cycle can begin quickly.
Finding this forum and meeting people like PaLady and you and so many others here who have taken the time to encourage me and give me advice when I've been at my lowest points has been my lifeline this past year. Even though we cannot escape (physically) the torture of our current reality, this place has given me a chance to fellowship with others who truly do know, REALLY KNOW how I'm feeling, a chance to sometimes encourage someone else - which makes me feel worthwhile again, and a chance to laugh and be silly on occasion - which we all desperately need!
I wish so very much that I could take your pain away from you. I can only imagine how awful things must be with such an illness. I know from my personal experience that people can be stupid and insensitive and say the most awful things without thinking. (I have nausea issues - nothing like yours, but I've struggled to maintain my weight, and it just amazes me when people say things like "oh I wish I had back troubles, cuz I need a good diet!"
How stupid!) I just wish I could shield you from the thoughtless people and find a way to make you feel whole again.
But, Gabby, please know that like PaLady said we ARE here for you always. Sending lots of love and prayers and hugs your way.