I recently heard about this site from a good friend..... thought I would drop in and add myself to the mix heheh.......
I have been reading some of the posts... sad, but inspiring.
Being a long termer, I guess I have found a way to endure ... there is no wrong or right way to go here...just what brings some peace.
I have over the years lost faith in the medical profession. There are a few that still view it as a dedication and not a (well-paid) occupation...I think heheh
They really only learn what they know of pain from 'us' anyway... trial and error. If I had a buck for every test they have done, every ml of blood every bit of tissue they have taken, blah blah.. well, let's just say , money wouldn't be a problem.
The old 'let's try this' attitude is all to prevalent with most....Gee, it worked for Mr. Smith??? haha sorry, please excuse my glibness...nah, don't, I earned it heheh.
I push my doctors, and I don't let up till I get an answer I understand...they don't like it, but well, too bad. They are pubic servants, and I will get what I pay for.
Sadly, we put our faith in 'them'..they then think they are gods. They are not.
Sorry, I got off track there, hahah that happens. As I said, just popped in to join in the convo...