Im so sorry to hear what a horrible time you have been having with this. It def. sounds like yours is in a much worse state than mine.
When my pain first began and i could not walk at all, i was severly depressed. Newly married, planning a family, ect. Thankfully for me, i have seen quite a bit of relief. I am able to walk most of the day, tho i do take alot of breaks and never stand w/o walking longer than a few minutes. that is when it hurts the most (just standing w/o moving). I take percocet everyday of my life, for the last 8 yrs, as nothing else works for me. We have tried to get off it and go to a longer acting med (opana) and i got sick from it....
i don't know how u did ketimine infusions! Did you get high from them while u were doing them??? The first time they added it to my IV during the block, i hallusinated big time, thought the doctors were trying to kill me, apparently put up a nice fight, and then took a LONG time to come out of the anesthiea. I didn't allow them to use it on me again for about
a year. How anyone can take that as a street drug, i will never know! Anyways, they did start adding it again, but in a much lower dose since i seemed to be seseptable to it. LOL
For me now, i am terrified of losing the use of my foot competely. I have two young children and NOT walking is NOT an option for me!!!! LOL I know i will never be able to have any procedures that deal w/ the actual foot as warned by my ortho who did the reconstruction back in 78. I will not let anyone touch the foot. My PM doc is now talking about
some sort of freezing of the nerve in the back that they do the blocks..theroy would be to get longer relief??? im not sold yet, so i hold off on that....
I have heard of alot of people having issues w/ the stimulator and pain pumps, so i have chosen not to go there either. Im so sorry your having trouble even w/ it out!!!!
anyways, just wanted to say that i hope u do find something that brings relief for you! what a sucky way to live our lives, huh!
well, enjoy ur foot ball games! lol shannon
2003, dx moderate UC
2000, dx selective IGA deficiency w/ anti IGA antibodies
2000, dx Antipholipid Antibody Syndrome
1999-current, chronic hemmoragic ovarian cysts, w/ partial ovary removal
1977, complete reconstruction of foot after lawnmower accident (chronic pain)
6mp 75mg, prednisone 40mg (just starting meds again)
percocet 5mg 3x day
potassium 3x day