it seems the thing a while back was nuerontin,but as you said everyone stops taking that. The lyrica I have been taking for about 2 and a half years along with cymbalta that they claim has 75% nerve help and 25% depression help. I also take dilaudid for the pain,tizanadine for my muscle spasms and ambien cr to try to get some sleep ONCE in a while.
I have had about 14 to 15 simpethetic nerve blocks with no positive results and also straight ketamine infusions, probably 4 or so and then they just started to make me sick without any benefits. Then my pain med doctor tried a spinal cord stimulator that was a complete disaster. Got it adjusted several different times and all it did was shock my ass and my foot.He did use the one that has 12 leads up and down my back. I got that removed as soon as possible and can still feel the spce where they inplanted it.
After all these nightmares I was introduced to a nerve specialist and within 2 months I had 3 perrenial nerves cut out of the bottom of my leg to hope stop the agony shooting into my foot with no relief from it at all except increasing the pain. Not to mention all the needle procedures I have had trying to burn the nerves and the trying to freeze the nerves, with all the action my foot has gone thru my new pain clinic said HOLD OFF all these surgeries and start to rethink and go slower while considering if any other types of actions.
I tell them everyday I walk around my house and yard with my cane and they told me that was not the type of actions they wanted me to be doing. More like heavier types of PT and other things that I havent started yet. I also forgot to tell you that 2 years previous I had to have my big toe screwed into my foot because of crystalizing and decaying bone stucter in that area so it really hurts more when they start really rubbing my foot and hit the screw area.
Anyway the only thing I do to help me walk or even do anything for more than 5-10 min is use my pain meds to my advantage by timing them when my pain will be the worst. otherwise I have no other help besides my lying flat on the bed with my foot elevated and my heat blanket set on low and just suck up the pain until (god help me) it settles down alittle bit so I can breath again.
Sorry its so negetive, but until something comes along, this is the way it is. Thank goodness football season is here!
If I hear or do anything helpful I will certinly let everyone know asap. Until then Its nice to talk to someone that has somthing in common, even if it sucks!!!!
Hope Everyone Has A Pain Free Day!